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WhistlingGypsy
10-10-2011, 08:38 AM
Just want to introduce myself a lil. I'm 21 and from beautiful Southeast Tn. I have been diagnosed with Fibro, Eczema, Celiac's disease, Immotile Ciliary syndrome, Raynaud's, and an unspecified connective tissue disease. 2 years ago I had a negative ANA, so my doctor never further pursued a lupus diagnosis. Well, lately I have developed photosensitivity and a rash that looks suspiciously similar to the malar rash. She pointed that out and decided to re-run ANA. Sure enough, it was positive this time. Now I am waiting on the results to the more specific lupus tests. Ahh waiting...story of our lives, right?

Anyway, I may or may not be a lupie so I hope I am welcome here :]

rob
10-10-2011, 09:36 AM
Hello WhistlingGypsy,

Actually having Lupus is not a membership requirment, you are most welcome here! Like you, many of us here have a virtual laundry list of autoimmune related disorders, and some that are not. Variety is the spice of life...

You come from a nice part of the country. Tennessee is really beautiful. I live up the road from you aways. I'm on the coast of Maine. Anyway, please make yourself at home, and welcome to WHL!

Rob

WhistlingGypsy
10-10-2011, 09:55 AM
I have noticed that autoimmune diseases definitely like to mimick one another. Didn't anyone ever tell them to be original?!? ;)

I have always wanted to go to Maine. I hear it is beautiful, but the furthest up the coast I have been is Massachusetts. Thanks so much for your warm welcome :)

steve.b
10-10-2011, 09:50 PM
hi whistling gypsy,

welcome to a caring group of friends.

it is good to have you join us.
many of us have overlapping symptoms. and our diagnosis changes.
auto immune disorders are not easy for doctors to understand.
so having a particular diagnosis is not overly important.....
the important thing is to have medication that is working properly for you.

again welcome.

Gizmo
10-11-2011, 02:20 AM
The gentlemen have said things very well, I just want to add my welcome and hopes that you stick around to swap information and support.

tgal
10-11-2011, 06:29 AM
As everyone else has told you please know that you are welcome here. We must also remember that there is no specific test for Lupus so, more often then not, it is a roller coaster trying to get diagnosed. We don't care what, if anything, you have been diagnosed with. We have family members with a little bit of everything or a lot of nothing! Just make yourself at home

WhistlingGypsy
10-11-2011, 03:38 PM
Y'all are truly precious. Sometimes I feel like I dont fit in anywhere lol. Thank you so much!

sharpiessave
10-11-2011, 06:34 PM
Hiya WG. I just wanted to add my welcome, and tell you thanks for starting this thread; I love it. Just this evening I was telling my sister (who has Crohn's) that she should join this amazing group of people. She's currently in one of her first flares since diagnosis, and is strugglin' with understanding/accepting that it's the flare that's making her feel like pooh, and it's not in her head. Funny; I used to call her Pooh-head. Hehe, unrelated. Anyway, welcome again! We're psyched to have you!'

Sharpie

WhistlingGypsy
10-13-2011, 01:19 PM
Again THANK YOU everyone!!

Just wanted to pop in to say that my doctor finally called me with my test results, and she said they were consistent with lupus. However, she did say that it didnt necessarily mean I had it. She moved my appointment up to next week so she can further explain and we can discuss "what to do now" ahhh! I'm anxious, I've been "sick" for a long time, so whatever diagnosis wont change that. But I sure would like to know exactly what I am dealing with here. I also dont like the idea of maybe having to see a specialist. I have built up a rapport with her, she listened to me when noone else would, and I have major trust issues with new doctors. Its a little overwhelming, which I am sure you all understand. Thats why I'm so grateful to have been accepted by you lovely people :]