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View Full Version : New Problems plus CRAZY, NON-CARING DOCTORS = DISASTER



mrstjscott
10-08-2011, 09:39 PM
Hi everyone,

Haven't been on lately but I am here now. No, things haven't gotten better yet, but here's hoping. So, since I moved back to Philadelphia, I have had a succession of crazy, non-caring doctors. One doctor (my new Rheumy) put in my notes to my cardiac doctor that he doesn't believe I have Lupus at all. SHOCKED!!! SHOCKED!!! Shocked and angry. WOW. So, when I went BACK to my new Rheumy, I asked why he did that and he said because he doesn't want doctors lumping everything into "LUPUS". That actually made sense. Well, upon having a lenghty conversation with my Rheumy, he believes I don't have SLE, but he 100% believes I have Discoid Lupus.
Well, I am so surprised at his "diagnosis". He took numerous blood tests and said that they "ALL CAME BACK NORMAL". Absolutely hard to believe.
When I went to the Rheumy, he actually SAW things going on with me with his very own two eyes. What is happening? I don't get it. My chest still hurts. My heart still palpitates and goes into a-fib. The Sjogrens is kicking my but as my right eye constantly sticks to itself (the eyeball feels like it sticks to something behind it)

Now, I am getting these strange lumps in my fingers. They are very strange looking (under the skin). They are terribly painful. I showed them to the Rheumy and he totally dismissed me as if they were not there.

I give up on doctors. I am going to wait on GOD to heal me. These doctors are impossible. Much more going on in this body but I am too tired to keep typing.
Hoping everyone is doing better than me.

Good night.

steve.b
10-09-2011, 12:49 AM
please remember,
some doctors are fools.
god helped train them for you to use.

please dont give up on all doctors........
find the next one and try again.

Elo
10-09-2011, 02:15 AM
please remember,
some doctors are fools.
god helped train them for you to use.

please dont give up on all doctors........
find the next one and try again.

I don't think anyone could have said it better. (:

It's horrible, and ridiculous, and disheartening, but you have to try, try again. You can do it, you can make it.

mrstjscott
10-09-2011, 07:51 PM
I just don't understand these lumps growing in my fingers. I have never had this before. They are so painful and are getting bigger. Plus, the lumps have spread to another finger. So now the lumps are in my middle finger and ring finger on my left hand.

tgal
10-10-2011, 12:12 AM
I am not sure what meds you are on but those can make blood work appear "normal" too. It doesn't mean that there is nothing wrong it simply means the meds are partially working at least

debbie-b
10-10-2011, 03:59 AM
What do these lumps look like?
Mine are hard and look and feel like a bone. I have it on four fingers, three on the right hand and one on the left. They are on the middle knuckles, are very painful and prevent me from making a fist.
I have Lupus SLE and RA, but the Rheumy thinks, this is from the RA, because Lupus does not cause deformed joints.
I hope you can find a doctor, who can help you. Don't give up.

Debbie

mrstjscott
10-11-2011, 05:59 PM
Debbie, the lump on my left middle finger is on the bone. The two lumps in the left ring finger are above the bone. I was researching some things and one piece of advice said to take a book and smash my fingers because it could be a pus boil. Another person said to go and get "it" drained. I don't know what they are but they are quite painful (the ones on the ring finger. The other one is just kind of there. So, I am going to make an appointment and see if my not so caring doctor can figure it out. The Rheumy basically ignored what I said about the lumps even though he saw them. Duh.

mrstjscott
10-11-2011, 06:07 PM
Hi Tgal. I take Prednisone (was taking 10 mg once per day but the doctor reduced it to 5 mg per day because I am having problems with bone loss); Metoprolol (50 mg twice per
day for a-fib and palpatations); Zolpidem (5 mg at night to help me sleep) and Acyclovir (400 mg. 1 tab 3x's day; I take this for the sores on my bottom lip. My bottom lip blisters, bleeds and burns). I just recently started taking Plaquenil again. The bumps happened before I started taking the Plaquenil but after I started taking the Acyclovir.

sharpiessave
10-11-2011, 06:54 PM
Hey Mrs Scott. I dunno if mine are the same as your's, but I used to get weird smallish bumps on my fingers too. They would start out as little pin prick looking thingies, then kinda spread, and the middle would be white, with red all around. They were so sore. Not just when I touched them, or bumped them up against anything. They would in turn kind of make my whole fingers sore. I hated the ones in between my fingers the most, cuz they rubbed together. Finger and hand problems are awful; you just don't realize how much you use your fingers until everything you touch hurts. So I'm so sorry you're having to deal with this.

I think it was maybe Marla who once told me that they could be finger ulcers. There was a more specific and complicated name for it though, of course. Anyway, the disappearance of the hand bumps was one of the signs for me that the Plaquenil was finally kicking in. It took a good 4 1/2 months, unfortunately.

I hope your's go away. Stupid hand bumps.

mrstjscott
10-12-2011, 10:30 AM
Hey Sharpiesave. You can just call me Theresa. These bumps are under the skin. Anybody just looking at my hands would probably not notice the bumps. But when I show them,
they say, "eeeewwww. What is that?" I can't explain the painful lumps. I may try to take a picture and see if anybody has anything similar. I just started taking plaquenil again. I am so horrible at taking meds but this time I am really going to try to take them every day. Thanks for responding.

magistramarla
10-17-2011, 06:24 PM
Hey Theresa,
As I was reading this thread, I just knew that I had read about something like this with arthritis. Sure enough, I found it! Here's a site with some info about rheumatoid NODULES, and it specifically mentions the fingers as a site for them. http://www.webmd.com/rheumatoid-arthritis/guide/rheumatoid-nodules
This part of the site has pictures - http://www.webmd.com/rheumatoid-arthritis/ss/slideshow-ra-overview
I might be off-base, but I wonder why your rheumy didn't make this connection?

Of course, there is also the possibility that they are cysts - I get those on my wrists. Those would be the ones that are pus-filled and a doc can remove them.
The ulcer idea is a symptom of Raynaud's, but I think that those are different from what you are describing. Ritzbit knows more about those.

If I were you, I would ask the doc if he thinks that they are nodules or cysts, and if he doesn't want to deal with it, ask to be referred to a hand specialist.
I had one of those to remove my last cyst.
Hugs,
Marla

lupyme
10-18-2011, 12:32 PM
I hope you get those lumps figured out. As far as rheumy's go, they are the weirdest group of docs there is. If you mention a symptom to them, they make an automatic judgement as to whether it's AI or not (if you can get them to listen) and if they believe it's not, they pretend they didn't hear you at all. I really don't understand that group. Orthos are helpful and kind. Cardiologists thorough and pleasant. Pulmonlologists are great too. I've got ___ologists out the wazoo and every last group of them have at least twice as good a bed side manner as rhuemy's do. (I have changed rheumy's)

Desleywr
10-18-2011, 04:58 PM
Not sure if the same? I have lumps on the first knuckle from the tip of most of my fingers some times they are just a lump and other times they are a little itchy and all are very sore when bumped. I have been told by my dr previous to being diag with Lupus that it was ostioarthritis. If the lumps were on the middle knuckle on the fingers then it would be RA. but this was before Lupus diag so not sure now? Some times the lumps are on the knuckle and they are there always but I do get lumps before the joint and those lumps also make the new nail grow out deformed. These ones do go away on their own. No drugs taken for this or new ones.

mrstjscott
10-19-2011, 08:47 PM
Thank you MagistraMarla. I am sick of all of the doctors I have been to since I moved back to Philly. I mean, I have not seen so many non-caring, no-knowledge doctors in my life. I mean, one nurse told me that since I am on medicare, I can't see a regular Dr. I have to see a Resident. For real? Ok. Thank you for posting the link. I am going to look at it
right now.

Thank you again. GOD BLESS.

mrstjscott
10-19-2011, 08:52 PM
Wow. I read the RA link and that's scary. I don't need another bad diagnosis. I don't. I have a dr. appt on Monday. I'll let y'all know. Thanks again.

JuliaL
10-19-2011, 10:05 PM
Those do sound like rheumatoid nodules. Way in the beginning before I was even treated, I got lumps like that on my finger joints, knuckles, and elbows. A doctor biopsied one of them and it came back as tissue with inflammatory markers (surprise, surprise, lol), in other words, inconclusive. Once I started getting treated, though, they slowly went away. I hope you get some better answers and help!

mrstjscott
10-21-2011, 08:43 PM
I went to the doctor yesterday and she said it's not rheumatoid nodules because I wasn't diagnosed with RA. So she is sending me to an orthopedic dr. the lumps are getting smaller. So, we'll see.