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MisCamp
09-21-2011, 02:36 PM
I was just wondering how many people suffer from stomach/digestive difficulties.
I am undiagnosed, and trying to put the pieces together.
From what I have read, for most people, Lupus can involve inflammation around the heart/lungs, but I read ONE place that it can include inflammation around the stomach.
I have TERRIBLE stomach problems. I have been tested for Crohn's; I have tried cutting out dairy, treated for ulcers, everything. My stomach/digestive tract is always bothering me and has my husband worried more than any of my other symptoms. I was just wondering how (in a practical sense) this fits into the Lupus puzzle, if it does at all?
Thanks!

tgal
09-21-2011, 02:45 PM
There is a great thread in here about Lupus patients with IBS (Irritable Bowel Syndrome). It is very common for Lupus and/or Fibro patients to deal with these issues. I am going to try and find that thread for you because it gave TONS of good information

Gizmo
09-21-2011, 04:37 PM
Have you been tested for gluten intolerance? Just a thought...

tgal
09-21-2011, 04:49 PM
OK I am going to post links to two other threads in here. One is about IBS and can be found...

IBS (http://forum.wehavelupus.com/showthread.php?8461-Lupus-and-MD.....is-it-possible&highlight=Irritable+Bowel+Syndrom)

This one is more about Celiacs which has to do with Gluten

HERE (http://forum.wehavelupus.com/showthread.php?5221-I-am-not-digesting-any-of-the-food-I-eat....&highlight=Irritable+Bowel+Syndrom)

There is another post by Susie that gives a wonderful, thought provoking post about IBS. I will continue to look!

tgal
09-21-2011, 04:54 PM
I found the one that I am looking for! I may make this one a sticky because I have to find it so often. I am going to post the whole response from Susie because she says it perfectly!!



http://forum.wehavelupus.com/image.php?u=3&dateline=1299513414 (http://forum.wehavelupus.com/member.php?3-Saysusie) Saysusie (http://forum.wehavelupus.com/member.php?3-Saysusie)
http://forum.wehavelupus.com/images/statusicon/user-offline.png Super Moderator Super ModeratorEmperor of the Universe


This is found in the "How often do you... Sort of TMI" thread




http://forum.wehavelupus.com/images/icons/icon1.png
I find it incredulous that doctors will diagnose a condition but not give you all of the information about that condition. Grrrrrrr. At any rate, here is some information concerning FM and IBS so that you will be well informed when you speak to your doctors;

"Anywhere between 30% and 70% of fibromyalgia sufferers will have to battle with this IBS. In fact, more and more research indicates that the causes of fibromyalgia and IBS are similar, and perhaps even identical. IBS is a condition that affects the large intestine, commonly called the bowel. It is characterized by an extreme sensitivity to muscle contractions in the large intestine, which can cause symptoms including diarrhea and constipation. Like fibromyalgia, IBS is classified as a functional disorder because there is no clear structural or chemical cause for the condition. People with both fibromyalgia and IBS tend to suffer from more severe symptoms than those with only one of the syndromes. If you have IBS and fibromyalgia symptoms, it is important that you find a treatment that can address both syndromes.

Like fibromyalgia, IBS tends to occur after a particularly traumatic or stressful life event. IBS may begin after an illness, a move, or beginning a new job. Much like fibromyalgia, stress is one of the larger causes or irritable bowel syndrome symptoms. Stress exacerbates contractions, diarrhea, constipation, and flatulence. Other triggers include specific foods, especially chocolate, milk products, and alcohol, certain smells, and certain medications.

Allso, like FM, IBS syndrome may be caused by a problem with neurotransmitters in the brain. Similar to fibromyalgia, IBS is often thought of as an illness caused by psychological reasons, such as stress. However, new studies show that psychological factors may not be the only ones at play in causing the illness or FM.


For people suffering from both fibromyalgia and IBS, it is important to understand how the two illnesses can impact upon each other. As many as 70% of fibromyalgia sufferers have IBS; similarly, 1 in 5 IBS sufferers have fibromyalgia. Dealing with both illnesses at the same time can be very difficult because the symptoms tend to be much more severe.
Recent studies have shown that people who have both IBS and fibromyalgia suffer from symptoms that are 38% more severe than those who only have one illness. IBS tends to exacerbate fibromyalgia pain and fatigue (http://forum.wehavelupus.com/fibromyalgia_fatigue.html), while fibromyalgia tends to increase the severity and frequency of IBS symptoms. Studies also show that people with both illnesses tend to have a worse quality of life (http://forum.wehavelupus.com/) than those with only one.This is because of the restrictions that these diseases can put on your lifestyld.


In the recent past two IBS-specific medications for women have been put on the market. Alosetron hydrochloride, sold under the brand name Lotronex, offers relief from diarrheal IBS. It works on the neurons in the digestive tract to slow waste production. Tegaserod maleate, sold under the brand name Zelnom, is used to treat severe constipation (http://forum.wehavelupus.com/). It works by increasing stool movement through the bowels."


It might be advisable for you to speak with your doctors soon about the possiblity of having IBS, especially if you suffer from FM. I wish you all the best of luck.


If you have IBS, you will probably experience all three of these symptoms (I know that I do):



abdominal pain relieved by bowel movements
change in the frequency of bowel movements
change in the look of bowel movements


IBS is a chronic illness, like FM and Lupus. IBS tends to get worse over time and it is exacerbated by certain foods or medicines (as mentioned above). If you suffer from IBS, you should also keep a record of the foods that you have been eating as well as your symptoms. If you have IBS, you may suffer from some or all of the following symptoms:


moderate to severe abdominal cramping
bloating after eating
flatulence
nausea
lack of appetite
very loose or watery stools
very hard, pebble-like stools
stools covered in stringy mucous
more than 3 bowel movements every day
extreme urgency or fecal incontinence

Peace and Blessings
Namaste
Sayusie



Last edited by Saysusie (http://forum.wehavelupus.com/posthistory.php?p=76117); 11-29-2010 at 08:34 PM.

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MisCamp
09-21-2011, 05:05 PM
This was IMMEASURABLY helpful. Thank you all!

BonusMom
09-21-2011, 08:09 PM
I have Gastroparesis, otherwise known as delayed gastric emptying, SLE, Sjogren's Symdrome, Raynaud's and a host of other garbage. My eldest son was diagnosed with IBS and non-ulcer dyspepsia.

magistramarla
09-21-2011, 09:16 PM
I have lots of gastric problems, too. I recently tried to get off of Prilosec - Bad Mistake! I get along well as long as I take it daily, but I'm a mess without it.
I also have a daughter who has IBS.
Hugs,
Marla

BonusMom
09-22-2011, 06:37 AM
I take Dexilant for GERD. I, too, attempted to stop taking it with disastrous results. I believe one of my meds contributes to the GERD, but that Sjogren's is the main cause.

tgal
09-22-2011, 10:26 AM
Oh GERD! That is a horrible thing. Sounds like such a little thing but boy did does it hurt!

MisCamp
09-22-2011, 12:49 PM
I take Prevacid to keep my gastric reflux down and prevent ulcers; and I'm always taking TUMS; I have like 10 a day sometimes. I also take Motillium (domperidone) to help my digestive process (something they give patients in eating disorder treatment when re-introducing food) which I'm still taking because it can help with acid as well.