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Nat
09-09-2011, 07:23 AM
Hi crew,
I've been taking prednisone since I had a bad flare in March this year and I'm nearly completely finished, down to 1mg this week. My rheumy wanted me to stay on them a bit longer this time to curb the disease activity and boost my chances of "remission". I know the usual side effects, increased appetite, increased risk of diabetes etc but I've noticed since being on them my nose runs like a tap. Not just sometimes but pretty much every time I eat any food! Tonight I bent over into the cupboard and I saw what I thought was water dripping on to the floor...yeah turns out that was my nose. Charming right?!

Just wondering if anyone else has had any bizarre side effects from the prednisone?

ritzbit
09-09-2011, 09:36 AM
Are you having any other problems right now?

debbie-b
09-09-2011, 12:36 PM
Hi crew,
I've been taking prednisone since I had a bad flare in March this year and I'm nearly completely finished, down to 1mg this week. My rheumy wanted me to stay on them a bit longer this time to curb the disease activity and boost my chances of "remission". I know the usual side effects, increased appetite, increased risk of diabetes etc but I've noticed since being on them my nose runs like a tap. Not just sometimes but pretty much every time I eat any food! Tonight I bent over into the cupboard and I saw what I thought was water dripping on to the floor...yeah turns out that was my nose. Charming right?!

Just wondering if anyone else has had any bizarre side effects from the prednisone?

That is one side effect you can live without, right? You poor thing.
I only get a steriod shot in my butt, once in a while, when I am in a bad flare. My rheumy doesn't like to prescribe prednison, because he hates the long term effects from them. He always says, " they do more harm than good".
I hope that weird side effect will stop soon.
Until then, keep your nose away from the food.LOL

Debbie

steve.b
09-09-2011, 07:44 PM
just maybe......

do you have sinusitus, that is triggered off even more by the steroids.

if you remember, i had bad sinuses, and needed an operation last year.
if your sinuses are inflamed, then the steroids could be effecting an existing problem.

Nat
09-11-2011, 12:45 AM
@Ritz - no more other side effects at the moment, my lupus symptoms are under control too...i really should just be thankful for that!!
@Steve - I had a cold about 3 weeks ago and think it turned into a sinus infection from me using a nasal spray...it seems to have cleared now but still get the dripping nose. so disgusting...even when i write it, it creeps me out. We'll see how much its cleared when I fly to and from Gero tomorrow!!

YollyDolly
09-12-2011, 06:30 AM
I am almost of my steroids after being on them from when I was firs diagnosed just over a year ago but then my rheumy wanted to bump me up to 10mg again for a week then 5 then back to I was on 2 then 1 then none. He said my other option as I had felt a slight flare coming on was to just touch it out. I went up but noticed the puffy cheeks straight away and they don't feel like they're doing anything amazing but I am guessing if I were not on them I could feel the difference. I'm really tempted to just go straight down back to two now, what do you think? I would start the 5 the day after tomorrow I think.

Thanks guys

debstar
09-12-2011, 02:51 PM
You know what I think :-) Listen to the Rheumy! There is a reason he wants you to take them in the prescribed doses, otherwise HE would tell you to drop down to the lower dose already.

rouge
09-12-2011, 09:48 PM
hi all,
I was diagnosed in the mid 90's with lupus, and was on prednisone for over ten years, my doses were 50mg and dropped to 25mg plus they also put me on plaquenil which i did not cope well at all. I was so emotional it was soooo bizarre then i got sjogrens and couldnt cry for a year! the eyes and mouth so so dry i ran out of tears and saliva :O
I think short term is not so bad but years and years it must do some harm for sure, thou it is a very trusted medication they use for lupus and one that has been around the longest.

YollyDolly
09-12-2011, 10:57 PM
OMG well the so called depression I think I am experiencing started a little after I started the plaquenil. I wonder if anyone else experiences this because maybe there is a link? I had Sjogrens first, I wish that would stop the tears haha. Yeh well I'm down to 5mg again tomorrow so that's good and hen hopefully go back off wooohoo :) but has anyone else had that experience, maybe not realizing the link but that they became emotional soon after they started plaquenil? Thanks. Obviously it probably isn't the medicine itself but I'm guessing what it does hormone wise etc if that makes any sense? Thanks! May just be a coincidence but it's worth looking into I think

rob
09-13-2011, 03:43 AM
OMG well the so called depression I think I am experiencing started a little after I started the plaquenil. I wonder if anyone else experiences this because maybe there is a link? I had Sjogrens first, I wish that would stop the tears haha. Yeh well I'm down to 5mg again tomorrow so that's good and hen hopefully go back off wooohoo :) but has anyone else had that experience, maybe not realizing the link but that they became emotional soon after they started plaquenil? Thanks. Obviously it probably isn't the medicine itself but I'm guessing what it does hormone wise etc if that makes any sense? Thanks! May just be a coincidence but it's worth looking into I think


Hi Yolanda,

I'm not aware of any links between Plaquenil and depression. I've been on Plaq for many years now, and I have no mood changes associated with taking it.

Steroids on the other hand, can induce all sorts of strange moods. Also, Lupus disease activity itself can cause a fairly severe bout of depression not only from the emotional fact that you know you have Lupus, but also from actual changes in brain chemistry it can cause. This is a fairly well known effect, but the actual mechanism behind it is not well understood. Plaquenil reduces Lupus disease activity which can as an indirect side effect, actually alleviate feelings of depression caused by the disease activity.

In regards to strange steroid side effects, I've not taken oral pred in a long time, but when I did, I'd get confused while talking, and people would tell me that my sentences were coming out somewhat backwards. I kinda sounded like Yoda.

I'd say things like- 'Steroids, I do not like", and "It sucks, having Lupus does". It was pretty comical.

Rob

YollyDolly
09-13-2011, 05:34 AM
Haha not to laugh but that is kinda funny. I understand you then, but that sucks and is so annoying that the Lupus actually can cause the chemical unbalance like how can that be fixed, will my anti depressants help that? Well hope the Plaq can do that then and make it better! I have been taking the steroids for about a year now, but I just dont know if that could be causing the depression or confusion because mood wise I have been fine since having Lupus for a year, well diagnosed for a year, up until the last few weeks I haven't been feeling great! But I have been feeling dumber (see I don't think that's a word now I'm making up my own languid) like I was doing TEE last year but just don't feel as 'with it' this year and simple things just seem harder then they were before. Then again it's been a while since use needed to use my brain so could just be that too. Thanks!

Jeannetta
09-14-2011, 08:51 AM
I know one thing about steroids & that is I despise the medication for it's side effects. I'm sure everyone else does too. Prednisone helped induce me into depressed, bipolar, & anger. Not a fun drug to be on @ all. The weight gain wouldn't be so bad if it was in the right places, & as fas as a runny nose I never connected the two together but yes I do myself get frequent nose runs that just come without any warning. I'm sure with this drug there are side effects many of us haven't even began to connect to prednisone , are most dreaded helpful steroid.

tgal
09-14-2011, 09:25 AM
I have been on both plaquenil and steroids for over 2 years. Plaquenil never caused me any issues, the steroids on the other hand, I look like a balloon in the Macy's Thanksgiving Day Parade! I am now on MTX as well as we try to drop my steroid dose and the one thing that the Pharmacist reminds me everytime that I go pick up the prescriptions is that these drugs weaken my immune system so things like colds, runny noses. flu's or whatever usually are not from the drug itself. Those things tend to come about more often when on these drugs because I am more susceptible to getting things due to the drop in my immune system. Basically, I don't have the immune system to fight off all of those bugs.

Just a little FYI from my pharmacist

YollyDolly
09-14-2011, 10:07 PM
It's so hard to know what is a link between the drugs and side effects or what is just a coincidence

Nat
09-15-2011, 04:19 AM
Apart from the weird, little side effects I haven't had too bad a deal with the steroids. I lost a whole bunch of kgs last year when i was sick so didnt put on much weight when i started the pred. This time ive been on them for roughly 5 months and just finished 2 days ago. fingers crossed i can stay off them for a while, rheumy said the latest blood tests are looking good too which im pleased about. Rescheduled my appointment with him till i'd been off the steroids for a while just to see how i go. plaquenil has been amazing too, no side effects and really notice it when i forget to take a dose. dont think i'd ever willingly go off that one.

@Yolly - i know the feeling about not feeling with it, i hate writing reports at work these days because sometimes i just cant get my thoughts out. Just glad i finished my degree before i had all this!!

YollyDolly
09-15-2011, 04:56 AM
Haha lucky, my Lupus was diagnosed last year as I finished my year 12 TEE and I want to start Uni next year :) thanks for your comments :)