09-01-2011, 02:19 PM
I was diagnosed with Post Viral Fatigue Syndrome (also known as CFS or M.E) when I was 14 years old, I'm now 19. However, I'm now starting to wonder if that was a possible misdiagnosis. I became ill with a viral infection when I was 13 and just did not get better. I began feeling tired all the time and sometimes sleeping up to 22 hours a day, but then at other times, I would over sleep and be awake for days. I then got stomach pains that were unbearable, followed by muscle and joint pains. I also developed sore throats and mouth ulcers regularly (I was diagnosed with PFAPA or Marshalls syndrome when I was 15 which was said to cause this), and I couldn't look at direct sunlight - my curtains would always have to be drawn and the slightest bright light would hurt my eyes. I also got a rash across my cheeks quite regularly (and still continue to get these, although they do fade) and I couldn't go into the sun without my skin itching or getting blotches on my skin within five minutes. Some of these symptoms fit in with CFS, but my main symptoms match 100% the symptoms that lupus carriers can develop. I'm just wondering if anyone else thinks it sounds like a mis-diagnoses? At this point I should probably say that my grandmother has lupus, and before I was diagnosed my doctor dismissed testing as he thought I was too young to develop it, however I've seen things online saying that carriers as young as 12 can have lupus symptoms - like the ones I've been having, without actually having lupus but testing positive to an ANA test. It seems very coincidental that I have similar symptoms but a completely different condition.