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FranzeeSmith
07-29-2011, 02:34 PM
Hi, my name is Fran and I am 22 years young. I was recently DX with Lupus July 19, 2011. I'm pretty sure I have had this disease since I was 14 years old because looking back at all the times I was in and out of the hospital, it all makes sense. Doctors would always send me home saying I just have a "virus" or a bad case of the flu. I was very frustrating not knowing what's going on with your body! it was times was just dying slowly because all these different unexplained problems kept happening to me. Now that I know I have Lupus its a HUGE relief for me, although I don't know whats next. I been having a flare up for the past 4 months and it is just awful! Its crazy how this disease change you life so quick. I joined this site so that I can learn different stories and meet other people that are going through the same thing.
Thanks for reading!
*FRAN*

tgal
07-29-2011, 02:40 PM
Hi, my name is Fran and I am 22 years young. I was recently DX with Lupus July 19, 2011. I'm pretty sure I have had this disease since I was 14 years old because looking back at all the times I was in and out of the hospital, it all makes sense. Doctors would always send me home saying I just have a "virus" or a bad case of the flu. I was very frustrating not knowing what's going on with your body! it was times was just dying slowly because all these different unexplained problems kept happening to me. Now that I know I have Lupus its a HUGE relief for me, although I don't know whats next. I been having a flare up for the past 4 months and it is just awful! Its crazy how this disease change you life so quick. I joined this site so that I can learn different stories and meet other people that are going through the same thing.
Thanks for reading!
*FRAN*

Hello Fran! First let me welcome you to WHL. This a wonderful site with fabulous people who will be here when you need something. We are a family and we are glad that you have joined us.

I completely understand the relief when getting a diagnosis. Once there is a name for what we have and a plan for the future it lets you breath a little. Now there are medicines to help and doctors don't look at you like you are nuts because you have all these weird symptoms. I am happy that you are at that place now. Of course it would be best if you were not ill at all but if you have to be then at least you have a name for it.

Once again, welcome to our family. I look forward to getting to know you

debbie-b
07-29-2011, 02:43 PM
Hi Fran,

Welcome to WHL, we are glad that you have joined. But I am very sorry that you too have Lupus.
The best thing for you to do, is read through some of the posts and if you have any questions, just ask.
This forum has a nice bunch of people, as you will find out soon.
Are you taking any meds yet?

Debbie

rob
07-29-2011, 02:57 PM
Hello Fran,

Welcome to our group. Please make yourself at home!

Rob

mdawncooper
07-29-2011, 04:35 PM
Welcome to this site. I am new too and I have learned so much from all of the wonderful people here. I know that I have had Lupus for at least six years but was diagnosed back in May. Although I have had my ups and downs I have a doctor who really seems to listen to me. We look forward to getting to know you more.

Melanie

Elo
07-29-2011, 04:42 PM
Hi Fran, welcome to WHL!
I'm glad you found us (:
Being diagnosed with Lupus can definitely be a blessing and a curse. On the one hand, you finally know whats wrong with you, but on the other, it's still scary.
I've still only been diagnosed as far as being told i have an autoimmune disease, so i can't yet really tell you my Lupus success stories, but ah well (: There are so many great people here who have lived with this disease for many years and know exactly what you're going through.
Welcome to the forum :D I hope you like it

lovedbyHim
07-29-2011, 04:53 PM
Hi Franky, nice to meet you. I hope you feel at home here in no time at all. These are good people who will walk with on as some days are rough.

lovedbyHim
07-29-2011, 04:56 PM
Hi Franky, nice to meet you. I hope you feel at home here in no time at all. These are good people who will walk with on as some days are rough.

Ok my Droid is possessed and it switched your name to Franky. Is there anyone on this forum who can do an exorcisim on this bugger!

Let's try this again. HELLO FRAN!

steve.b
07-30-2011, 12:58 AM
hi fran,
welcome.
i too had my symptoms at about 14, but had to wait a little longer for a diagnosis.
i was 47 when diagnosed, turning 50 later this year

Elo
07-30-2011, 10:33 AM
Ok my Droid is possessed and it switched your name to Franky. Is there anyone on this forum who can do an exorcisim on this bugger!

Let's try this again. HELLO FRAN!

Hehehe.... Franky makes her sound like a mafia member. "Franky says Lupus better leave soon or Franky will find a way to shut Lupus up... FOR GOOD" *evil stare - crosses arms menacingly and plays with gold chain around neck*

Ehem. Sorry, got carried away. HI FRAN!!! How are you? Go ahead and tell me to shush, hehe.

lovedbyHim
07-30-2011, 11:58 AM
Hehehe.... Franky makes her sound like a mafia member. "Franky says Lupus better leave soon or Franky will find a way to shut Lupus up... FOR GOOD" *evil stare - crosses arms menacingly and plays with gold chain around neck*

Ehem. Sorry, got carried away. HI FRAN!!! How are you? Go ahead and tell me to shush, hehe.


How I love your humor!

FranzeeSmith
07-30-2011, 12:36 PM
Oh my goodness!!! That is crazy! What was it like going all them years without being diagnosed?

FranzeeSmith
07-30-2011, 12:40 PM
Lol!!! So silly. I love it! Im fine, how are you?

FranzeeSmith
07-30-2011, 12:46 PM
I take 400mg of Plaquenil a day and 50mg Tremadol as needed.

FranzeeSmith
07-30-2011, 12:58 PM
Lol how are you?

FranzeeSmith
07-30-2011, 01:09 PM
Ok.....I need help. I'm really confused on how a forum works. I read someones post then I click reply...so does that person know I replied to them or do I have to mention who the reply is for? Does that make any sense? So confused!:)

tgal
07-30-2011, 04:04 PM
Ok.....I need help. I'm really confused on how a forum works. I read someones post then I click reply...so does that person know I replied to them or do I have to mention who the reply is for? Does that make any sense? So confused!:)

Hi Franzee,

If you look over toward the top left you will see a button that says "What's New". If you click on that it takes you to a page that has every thread that has had posts made since you were here last. When that person comes on and goes to that section they will see that a comment has been made and they will go in to look at it.

Hopefully that made sense to you. If I need to be more clear let me know (really bad head day here)

Elo
07-30-2011, 04:04 PM
Ok.....I need help. I'm really confused on how a forum works. I read someones post then I click reply...so does that person know I replied to them or do I have to mention who the reply is for? Does that make any sense? So confused!:)

That makes perfect sense - I was wondering the same thing when I first joined.
The person doesn't know that you replied directly to them - the reply kind of just is a "reply to thread". So normally, when someone wants to reply to someone in particular, they click "reply with quote", which quotes the person, and says who originally posted the message, etc.
To check up on threads that have been added on, you can go to "settings", and it will bring up all subscribed threads (any thread you comment on), that have been commented on recently.

So far you're working the forums fine (: it just takes a bit of fiddling to figure out, but it's not too bad.
Glad to hear you're doing fine! Feel free to rant or whine anytime - we all need to do it sometimes, and we're all here to help.

tgal
07-30-2011, 04:07 PM
That makes perfect sense - I was wondering the same thing when I first joined.
The person doesn't know that you replied directly to them - the reply kind of just is a "reply to thread". So normally, when someone wants to reply to someone in particular, they click "reply with quote", which quotes the person, and says who originally posted the message, etc.
To check up on threads that have been added on, you can go to "settings", and it will bring up all subscribed threads (any thread you comment on), that have been commented on recently.

So far you're working the forums fine (: it just takes a bit of fiddling to figure out, but it's not too bad.
Glad to hear you're doing fine! Feel free to rant or whine anytime - we all need to do it sometimes, and we're all here to help.

Wow. You have found a completely new way to do this. I think it is a bit harder but whatever works!

Elo
07-30-2011, 04:14 PM
Wow. You have found a completely new way to do this. I think it is a bit harder but whatever works!

Hehe, yeah, I stumbled across it while trying to figure stuff out. I just found that it's an easier way to keep up on threads that i personally have commented on. The what's new feature is great too, but i've found that sometimes it only shows what's happened over all recently, and not on what i'm keeping tabs on, so it's a bit of a time saver IMO.

tgal
07-30-2011, 04:25 PM
Hehe, yeah, I stumbled across it while trying to figure stuff out. I just found that it's an easier way to keep up on threads that i personally have commented on. The what's new feature is great too, but i've found that sometimes it only shows what's happened over all recently, and not on what i'm keeping tabs on, so it's a bit of a time saver IMO.

You are correct it shows everything that has happened since you were here last. That is what I am looking for so I guess that is why I don't do it the other way. LOL Glad you know and as long as you keep posting do it any way you want!