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ruziska
07-27-2011, 02:15 PM
Does anyone know if you can donate plasma if you have Lupus? We have a BioLife Plasma center here and I was wondering. Thanks!

Elo
07-27-2011, 03:03 PM
I was wondering that as well... that and bone marrow - since I've wanted to join the bone marrow registry for a while, but don't think i'd be able to.

tgal
07-27-2011, 03:11 PM
I am not sure about that but since I can't give blood I am sure I can't give plasma either. I wanted to give blood to support a young man with cancer but, not only do I have Lupus, I am on too many medicines and they didn't want mine

n.mac
07-27-2011, 03:18 PM
A few years ago prior to being diagnosed with lupus I was not allowed to donate plasma or platelets due to elevated lead levels from exposure from work. Our bone marrow helps to filter our blood and many substances tend to collect there.

Hquest
07-27-2011, 03:20 PM
The more I learn about Lupus the more I am amazed at the resolve and the determination I find in those affected with this disease to keep up with life as much as possible. The fact that you are thinking of donating, even if you can't!, is lovely.
Joy

steve.b
07-27-2011, 07:01 PM
i used to give blood regularly.

i am no longer alowed to.

check with the blood bank, giving a list of your medications.
lupus does not exclude you, it is the medications we take.

Gizmo
07-27-2011, 09:08 PM
I was told I can't donate, but I'm on a patootie load of meds. It seems to me I checked back when I was just on plaquinil and prednisone and was told "no, but thanks." I was at the DMV today and wondered if we can be organ and tissue donors. My uncle donated his body to a med school when he died, maybe that's the way to go - so future doc's can see first hand what lupus does to the body.

magistramarla
07-27-2011, 09:45 PM
Gizmo,
Yes, I think you've got the right idea. If we can't save a life directly by donating blood or organs, at least we can contribute to saving lives in the future by adding to the store of knowledge about our diseases.
Hugs,
Marla

GeoKasher
07-28-2011, 05:44 AM
Dumb question, but why can't people with Lupus donate blood? I have never given blood for the simple fact that for some reason I do not bleed well. I always dreaded the quarterly thyroid testing because they had an awful time getting the blood for the test.

lizbond36
07-28-2011, 06:04 AM
I call the red cross a few week ago, they needed blood bad. They asked me question's I said Yes I have SLE and the lady told me, I am sorry you can't donate. They needed my blood type A Postive. I felt like my disease was laughing at me. But I see if they need help handing out cookies ETC. I like to give back I found other means :-)

Hugs
Liz

lizbond36
07-28-2011, 06:06 AM
I was told I can't donate, but I'm on a patootie load of meds. It seems to me I checked back when I was just on plaquinil and prednisone and was told "no, but thanks." I was at the DMV today and wondered if we can be organ and tissue donors. My uncle donated his body to a med school when he died, maybe that's the way to go - so future doc's can see first hand what lupus does to the body.

On my card I have Yes before I was DX with Lupus, my doctor told me when I have to renew it mark No. I might just do want your doing. If that ok with my husband.
Hugs
Liz

Ellie Hansen
03-07-2012, 01:47 PM
I call the red cross a few week ago, they needed blood bad. They asked me question's I said Yes I have SLE and the lady told me, I am sorry you can't donate. They needed my blood type A Postive. I felt like my disease was laughing at me. But I see if they need help handing out cookies ETC. I like to give back I found other means :-)

Hugs
Liz



Hi, I was newly diagnosed and I found out that there are a few companies that look for donors who have lupus to donate plasma. They also are looking for other autoimmune disease donors too. At first, I thought it was a scam, because they were posting ads that said things like "make $500 for a plasma donation if you have SLE" and I thought that it probably was some bogus thing.

But I was really pleasantly surprised to find out that it's legit and I was happy to know that I was helping in some small way so that scientists can make better treatments and make it easier to diagnose. it took my doctor a long time to diagnose my lupus, and he thought I had lyme for months and months, so for me, it was good to know that I was donating to help other people with lupus get diagnosed faster.

I donated for SeraCare Life Sciences who I found by searching around on blogs and read some interesting posts about lupus. They paid me $500 for each donation, though, I was only able to donate twice. The person I worked with was excellent - Emily Sherman, the program manager, who is so sweet and friendly and made me feel assured that everything would be safe and stay private. She was so patient and answered all my questions, as I had many of them since I was kinda hesistant about the first one and wasn't sure what I was getting myself into. Emily makes you feel like you're the only donor and I know she has tons of them, so I really appreciated that it felt like I was getting special attention. if you want to help lupus research, I recommend checking out this company.


Edit: I read on one of the rules pages that if I'm new, I can't post a link and I had posted one yesterday to this place's website, so I'm sorry about that! maybe if anyone is interested they can google search them. thx!