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giggle
07-13-2011, 02:20 PM
Ok... so my partner STRONGLY suggested I get a hearing test. My hearing has been declining terribly and it is becoming frustrating for everyone involved. My boss has yelled at me frequently for not being able to hear well enough to take a detailed phone message.

Anyway... so I went to get a free hearing test, the beep kind. I scored above average hearing... the lady said "Beautiful hearing!"
My lower range sat on 20... but they higher ranges were above ten, one frequency scoring 0's!! 0's is perfect hearing by the way.

So... what the BLEEP!?

She suggested its a problem with the way my brain converts what I am hearing and I should see a specialist.

Anyone experience this? And where do I go from here, I dont want another freaking specialist... they are all already costing me $300 a pop not to mention I have the flight bill, another $300 on top of any specialist visits. I only make $200 a week!!!!

Saysusie
07-13-2011, 02:42 PM
OMGosh..I thought it was only me. I, too, have perfect hearing but I miss so much of what people are saying. And, please do not try to whisper any thing to me at all, I miss everything that is being said!
I was told that my problem was that I am constantly thinking about other things when in a conversation and that my thoughts drown out the actual conversation. I do this on the telephone, in actual conversations..well, all of the time! It is only after someone says, repeatedly, "Did you hear what I said?" that I realize that I have missed a big portion of the conversation. To make matters worse, I cannot even tell you where my mind went, what I was thinking about or why I was even thinking about something else!!
I know that my mind drifts a lot and that my tactile abilities cannot keep up with the rapid process of thoughts in my head. In plain english..I cannot stay focused on anything so I miss just about everything LOL
I hope that you do not have to pay for another specialist. I wish that I had some suggestions to help you, but as you can see, I am hopeless in this area :-(. I just wanted you to know that you are not alone.,

Peace and Blessings
Namaste
Saysusie

giggle
07-13-2011, 03:24 PM
Thank you Saysusie :)

It all started coming together when she asked me the initial questions...

"Do you turn the radio or TV up louder than you used to?"...... "No, quite the opposite in fact!"

I am really sensitive to noise, load noises stress me out.

I just hope this can be covered by a neurologist as well.

Saysusie
07-13-2011, 03:28 PM
I am very sensitive to sounds also and actually prefer to watch TV by reading the closed captions (no sound at all).
I hope that you find some answers :-)

Peace and Blessings
Namaste
Saysusie

tgal
07-13-2011, 03:37 PM
OMG I have to raise my hand to this one! I can't watch movies anymore because I cant stay focused that long. I am constantly saying "what did you say" I have thought it was my hearing but it may very well be that I am not focusing. We know that my brain has been impacted by this disease and my neurorpsych exams get worse with each one. My short term memory is shot and maybe this is why instead of my hearing. The neurpsych doc said that, unlike most people that don't remember something I am one of the few that has the problem of getting the information "in". Basically, I don't even get the information in brain so I really can't forget it.

This makes perfect sense and I thank you so much for sharing!! I will say that the only good thing that comes from this is that I can watch reruns of a TV show 10 or 12 times and I don't remember what happened! LOL

Peridot20_Gem
07-13-2011, 04:35 PM
Giggle,

Great thread mate... i'm sensitive to noise now and if my hubby chats to me half the time i can't seem to pick is wording up correctley, i know i've had a few bangs on my head of seizures and a bursted ear drum but besides that my hearing is getting worse and i find it happenes more when my concentration is abit anyhow also.xxx

steve.b
07-13-2011, 08:22 PM
i to will join the cant hear clearly club.

what i have been able to find out.

due to brain fog.
we are unable to proccess too many things at once.
the greater the fog..... the fewer things we can proccess at the same time.

my hearing is tested regularly. i have slight drop in the lower end of the scale.
hearing aids will not help me at the moment.

other factors that contribute:
tinitus is a ringing in the ears. this is a usual side effect of having lupus and fibro.
(i have both)
if your brain is already hearing the tinitus....it will have trouble proccessing other sounds.
add to this other background noise...... you do not hear properly.

my brain does have problem proccessing so many things at once.
it isnt that i cannot hear them.... i cant understand them.

fibro also makes all nerves sensitive......
hearing is by nerves, so hearing becomes sensitive when your fibro is active.

the action of nerves accepting the noise vibration is similar to nerves being "excited"
an excited nerve is a painful nerve.........
so noise hurts

hopefully this makes at least a little sense.... bag fog day myself.

tgal
07-13-2011, 08:39 PM
i to will join the cant hear clearly club.

what i have been able to find out.

due to brain fog.
we are unable to proccess too many things at once.
the greater the fog..... the fewer things we can proccess at the same time.

my hearing is tested regularly. i have slight drop in the lower end of the scale.
hearing aids will not help me at the moment.

other factors that contribute:
tinitus is a ringing in the ears. this is a usual side effect of having lupus and fibro.
(i have both)
if your brain is already hearing the tinitus....it will have trouble proccessing other sounds.
add to this other background noise...... you do not hear properly.

my brain does have problem proccessing so many things at once.
it isnt that i cannot hear them.... i cant understand them.

fibro also makes all nerves sensitive......
hearing is by nerves, so hearing becomes sensitive when your fibro is active.

the action of nerves accepting the noise vibration is similar to nerves being "excited"
an excited nerve is a painful nerve.........
so noise hurts

hopefully this makes at least a little sense.... bag fog day myself.

Awesome post! Thank you. Great information

giggle
07-13-2011, 09:50 PM
Have I ever told you guys how much I love you for being so awesome? : )

I have terrible tinnitus, some nights I cant sleep if I pay too much attention to it when i first jump into bed.

And you are right... noise does hurt, it hurts terribly. My partner doesnt get that when he is storming around the house slamming cupboard doors and dropping pots into the sink. I dont have fibro though, not that i have been diagnosed with anyway. Im really sick of having new things so fibro can leave me alone :P

Thank you for the info Steve : ) and thank you everyone for your replies!

lovedbyHim
07-14-2011, 02:39 AM
Gosh I can't believe all of this! This is me! It is making my work harder and harder. My boyfriend has picked up on it and helps me. I jokingly say he's the other have of my brain.

I now turn my music down. I always played it loud. I hear ringing and static too often.

Wow...I thought it was MENTALPAUSE...

steve.b
07-14-2011, 02:50 AM
Wow...I thought it was MENTALPAUSE...

it is !!!!!!!!!!!

mentalpause

love it

lovedbyHim
07-14-2011, 03:41 AM
Tehehe..MENTALPAUSE does sum it up.

giggle
07-14-2011, 04:14 AM
ha ha i love that... mentalpause. My poor brain : )

Manderson
07-14-2011, 07:24 AM
Gosh I can't believe all of this! This is me! It is making my work harder and harder. My boyfriend has picked up on it and helps me. I jokingly say he's the other have of my brain.

I now turn my music down. I always played it loud. I hear ringing and static too often.

Wow...I thought it was MENTALPAUSE...

Part of it can be.

But yeh, this is me at times and yesterday was one of those times. When there is more than one convo going on at the same time my head seems to want to explode. It happened at work yesterday and I was rather terse with a co-worker about it. For me it's too much external stimulation or whatever.

BonusMom
07-14-2011, 07:56 AM
DH is soft spoken so it,s difficult to hear him. Then, throw a blaring TV in to the mix and you've got a recipe for disaster.

I get REALLY frustrated because he's convinced he told me something and I KNOW he didn't. (Like office gossipXi don't forget that stuff) and he insists that I just forgot. No, Buckwheat, I may have forgotten to get milk at the store, but I don't forget his work stuff-because he rarely indulges me in the first place

At work, I definitely have mantalpause!

rob
07-14-2011, 08:03 AM
Part of it can be.

But yeh, this is me at times and yesterday was one of those times. When there is more than one convo going on at the same time my head seems to want to explode. It happened at work yesterday and I was rather terse with a co-worker about it. For me it's too much external stimulation or whatever.

Between test firing guns and blowing things up for a living, and standing in front of the speaker stack at one too many Van Halen concerts, I no longer have that problem. I just smile and nod a lot. Silence can be bliss.

tgal
07-14-2011, 08:23 AM
DH is soft spoken so it,s difficult to hear him. Then, throw a blaring TV in to the mix and you've got a recipe for disaster.

I get REALLY frustrated because he's convinced he told me something and I KNOW he didn't. (Like office gossipXi don't forget that stuff) and he insists that I just forgot. No, Buckwheat, I may have forgotten to get milk at the store, but I don't forget his work stuff-because he rarely indulges me in the first place

At work, I definitely have mantalpause!

I used to argue that I was not told things but now I know I most likely was. We keep a white board in the kitchen/dining area (looks fab LOL) so things can be written down for me. Sadly I will see things on the board and still not remember being told. I went through surgical menopause 16 years ago so my mental issues are not from that (although some would argue that I have always had mental issues LOL)

tgal
07-14-2011, 08:25 AM
Between test firing guns and blowing things up for a living, and standing in front of the speaker stack at one too many Van Halen concerts, I no longer have that problem. I just smile and nod a lot. Silence can be bliss.

Van Halen- 1984 album with David Lee Roth? Concert ROCKED

Peridot20_Gem
07-14-2011, 04:00 PM
Have I ever told you guys how much I love you for being so awesome? : )

I have terrible tinnitus, some nights I cant sleep if I pay too much attention to it when i first jump into bed.

And you are right... noise does hurt, it hurts terribly. My partner doesnt get that when he is storming around the house slamming cupboard doors and dropping pots into the sink. I dont have fibro though, not that i have been diagnosed with anyway. Im really sick of having new things so fibro can leave me alone :P

Thank you for the info Steve : ) and thank you everyone for your replies!Giggle,

I know we're a few miles away mate.lol but come and tell my husband when he's shutting the kitchen doors hard and wants the tele up load when i'm the one sitting by it...i swear to god sometimes they think we're exaggerating. xxx

ritzbit
07-15-2011, 11:36 AM
3. How common is vertigo and dizziness in NPSLE? Why does it occur? Sausalito, CA

Vertigo is an uncommon problem in patients with lupus. More often than not it is caused by some other disorder. The frequency of this problem in lupus has not been systematically investigated, but it would appear to be rare. However, definite cases of vertigo, hearing loss, and the combination of both have been reported in those with lupus. Some cases may be caused by vasculitis (inflammation of the arteries which leads to their narrowing which restricts blood flow) or anti-phospholipid antibodies (which predisposes to the formation of blood clots which can also limit blood flow). Others may have antibodies to components of the inner ear which may disrupt its function. SLE is one of several causes of the syndrome which has been called immune mediated inner ear disease (IMIED).

Thats from 15 questions on the LFA website. It made me think of you because of that last part about the inner ear.

giggle
07-15-2011, 05:10 PM
Ooo thanks ritzbit... very interesting : ) Might bring this up with the rheumy as well.

Terry... its hard for them to get it, hell its hard for me to understand really... I just get irritated but dont think to myself 'maybe I have an over sensitivity to noise'

Peridot20_Gem
07-16-2011, 02:52 AM
Giggle,

I know where your coming from mate as it really gets annoying...and the slightest high noise gets my temper up, it's light my ears have gone very sensitive within the last year alone.

Nat
07-16-2011, 08:19 AM
What a spin out...this Is me too. Ive noticed ive found it a bit more difficult to understand things recently and I'm always told the tv is blaring. My brother reckons he heard the tv in my house over his headphones when he was coming up my driveway when I was watching the footy but I dont even think its loud. Good to know I'm not going deaf!!

Peridot20_Gem
07-18-2011, 06:11 AM
What a spin out...this Is me too. Ive noticed ive found it a bit more difficult to understand things recently and I'm always told the tv is blaring. My brother reckons he heard the tv in my house over his headphones when he was coming up my driveway when I was watching the footy but I dont even think its loud. Good to know I'm not going deaf!!Good one Nat,

Nice to hear someones got hypo earholes mate...that made me laugh your brother could here it coming up the drive.