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BonusMom
07-09-2011, 10:12 AM
Just a couple of weeks ago I posted in the thread about my kids, eldest being healthy as a horse. Well, that is not the case.

Over the last couple of years he's had some digestive issues similar to my own and as a result has rduced his food intake.

He went to the doctor and the doctor was alarmed to see that he's lost 25 lbs. W/o trying. My son's going to have an abdominal ultrasound on Tuesday to see if there's an issue with his liver, spleen or gallbladder.

Also, he's having nosebleeds that originate in the sinuses vs the nose and they will not stop. The doctor ran some labs. He's not anemic, bit now has to see an ENT and a hematologist on Tuesday as well.

Yep, I'm nervous as all get out. This is one of my babies. It's ok for me to have a challenge, or ten, but not one omy kids. I told him last week I was getting worried because he was getting skeletal looking. He said he was the same weight as he was in high school, but he looks skinnier to me.

Keep a good thought please. I don't want to borrow trouble but I could just cry.....

rob
07-09-2011, 10:17 AM
It's OK to be nervous, he's your son. Karen and I will keep him in our thoughts. Try to stay positive, I know that's easier said than done. Please let him know he has folks out there rooting for him.

Rob

Manderson
07-09-2011, 10:21 AM
Oh Bonus Mom - I can imagine how you feel. My son and I are not always on the best of terms, but I'd be devastated if there was some health problem. No matter how old they are, we just want to absorb whatever ails them - physically and emotionally. Hang in there lady. I'll keep a good thought.

tgal
07-09-2011, 10:57 AM
Oh I am so very sorry! I am going through much the same thing with my daughter. Not to the extent that you are but she is being monitored for our disease. I only tell you that so you know that I can feel for you. I understand how your heart breaks and I am always here if you need to vent. I hope that all goes well with the doctors and please keep us postedd

Elo
07-09-2011, 05:22 PM
I'm sorry to hear that your Son isn't doing so well. Sometimes I think that it's almost harder for loved ones than the sick, because they can only sit by and wonder and worry. Completely helpless as to being able to do anything or help them out.

I really hope to hear that everything turns out okay - I've got my fingers crossed for you both.

Hang in there... sending bright blessings your way.

Bonita
07-09-2011, 06:49 PM
As moms we always want to take on anything that makes our kids hurt but we cannot. So sorry to hear that your son is ill will be praying for him . Bonita

Gizmo
07-09-2011, 08:24 PM
My heart really goes out to you. It is so frightening to watch your child change before your eyes and not know why. And then you get so scared that you don't WANT to know why he's sick. Thank goodness that your son's doctor is on top of this, though, and was able to get him in to 2 specialists and a test on Tuesday! That seems rather miraculous to those of us who have waited 3, 4 or 5 months for an appointment.
My daughter used to have gushing nosebleeds, but they stopped completely when she was treated for AI disease. She saw a hematologist and had tons of labs, but nothing scary came out of it.
I discovered, after many years of literally worrying myself sick, that anticipating the worst doesn't change the outcome - it only prolongs the emotional pain. I used to think that if I prepared myself for the worst news, then it wouldn't be so bad when it happened. Well, the worst never happened, but I had some horrific days trying to prepare myself for it anyway. I know you can't turn off those worry glands, but try to at least distract yourself with something you enjoy. I'll be thinking about you and your son.

steve.b
07-09-2011, 08:47 PM
i feel for you.
i know what it is like to have a step child take ill.........
and be helpless to help them.

i will keep tuesday in my thoughts.
hope the answer is right in front of the doc.

magistramarla
07-12-2011, 02:23 PM
Hi BonusMom,
I just found this thread, and it's Tuesday.
I hope that you let us know what the ultrasound showed about your son.
Hoping that it turns out to be something that is easy and quick to solve.
Hugs,
Marla

Saysusie
07-12-2011, 02:56 PM
BonusMom; I, too, am just now finding this thread today (Tuesday). Please know that you and your son are in my prayers. Also, keep us posted on the results of the ultra-sound etc.

Peace and Blessings
Namaste
Saysusie

Peridot20_Gem
07-12-2011, 04:44 PM
Hi Bonusmom,

I'm deeply sorry to hear about your soon and it must be so terrible watching him suffer especially when your a parent.

Please let us know your sons results and i'm thinking of you deeply and your soon.

Hugzzzzzzz you way Terry xxxx

BonusMom
07-12-2011, 08:00 PM
Thanks everyone for the well wishes.

The hematologist ordered additional labs this morning and the results were already posted. The fibrinogen levels were low; clotting factor high; CBC normal; Albumin high. We don't have the results back for the ultrasounds yet, but should by tomorrow. I believe there is something dreadfully wrong with his liver.

He never drank any alcohol until he was 22 and doesn't drink a lot so I highly doubt it's alcohol induced, however, I do believe it is a liver ailment that is causing his sxs

Please continue the good thoughts. I'll keep you posted.

magistramarla
07-12-2011, 08:13 PM
BonusMom,
Hang in there, girl. I know you're worried. We can still hope that it's something that is easy to deal with.
Hugs to both of you,
Marla

BonusMom
08-01-2011, 03:41 PM
Steve's still losing weight. He's having weekly labs drawn as Factors I and VII are continually abnormal, as are the PTT levels. The hematologist suspects a problem with his liver (although he's not a heavy drinker and not a drug user). He's having a CT, with contrast, of the liver and abdomen on Weds. and will see a GI on the 17th.

Please keep a good thought.

tgal
08-01-2011, 03:46 PM
Your entire family is in my thoughts. Please keep us updated.

BonusMom
08-01-2011, 03:53 PM
I added a couple of recent pix to my album today. You can see the weight loss since Steve's wedding last October. The black and white photo and the pix taken at Bodega Bay on 7/16/11, although he's wearing a jacket, he's noticeably thinner.......breaks my heart.

lovedbyHim
08-01-2011, 04:10 PM
I added a couple of recent pix to my album today. You can see the weight loss since Steve's wedding last October. The black and white photo and the pix taken at Bodega Bay on 7/16/11, although he's wearing a jacket, he's noticeably thinner.......breaks my heart.

My heart is heavy for you. My son who has mental illness also has an eating disorder and he gets into cyclical vomiting at times. I watched him nearly starve many times. It's torturious for a mother as we fed them from birth. Please know I am praying for all of you. ((hugs))

mdawncooper
08-01-2011, 05:41 PM
It is so difficult when your child is struggling. My daughter has had chronic daily migraines for 4 years now and I have watched her go through so much. Our thoughts and prayers will be with you and we will be anxious to hear of his results.

Melanie

magistramarla
08-03-2011, 12:55 PM
Hi BonusMom,
Do the docs have any theories yet? Considering what you have, are they thinking that he has something autoimmune?
We all know that it's comforting when we can name the beast, and then start to fight it.
I hope that you hear some good news soon, and be sure to let us know.
Hugs,
Marla

BonusMom
08-04-2011, 08:19 PM
Hi M-
They ran "the usual" autoimmune panels late last week and all were WNL.

The abdominal US was normal. The abdominal CT scan, with contrast, was yesterday and the results aren't back yet. Hopefully, the doctor will call him by tomorrow afternoon with the results.

I can't recall if I posted this previously or if I just told my mom (longggggg week), but the hematologist thinks it's liver disease causing Steve to be ill.

I will post as soon as I get an update....

magistramarla
08-04-2011, 09:45 PM
Hi BonusMom,
I have done so much research, and I keep thinking that I've read about some instance of an autoimmune disease attacking the liver and nothing else. It certainly seems strange that such a young man would just develop liver disease out of the blue.
Hang in there and take care of yourself too. The last thing that you need right now is a bad flare.
Thinking of you.
Hugs,
Marla

steve.b
08-05-2011, 01:07 AM
when i was first diagnosed, i had several major organs involved.
my liver was one of them.
lupus can effect someones liver.