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justomegirlindallas
07-06-2011, 02:02 PM
I just found out that I am pregnant. (Im a 2 days late on my cycle so I am most likely barely 3 weeks pregnant) My dosage of methotrexate has been subcu injection My vial is 25mg/ML and I have been on 0.4ml 1x a week but the last dose I had was the week of june 15th. Essentially I am estimating to have had at least one dose during the pregnancy. Obviously I am concerned about methotrexate use. I do not plan to take anymore methotrexate and have not taken any methotrexate since at least a week before conception. I went to an OBGYN this morning who sent off blood test to confirm pregnancy. Once he gets the result back (tonight or tomorrow) he will refer me to a high risk OBGYN to assess viability of the pregnancy. What does that mean to assess viability of the pregnancy. It was hard to find research on how patients in this situation are managed. Will I most likely be required to terminate the pregnancy? My husband and I were a bit surprised obviously. Will the pregnancy be viable? Are the risks to the fetus too significant to even attempt to continue the pregnancy? someone help me out with some experience here please.

lovedbyHim
07-06-2011, 02:20 PM
Well I gave birth to 4 children and miscarried 2 x. I would say to you enjoy, they are wonderful! Yes see a specialist and follow his advice. This could be the best thing to ever happen to you. There is a thread recently started by another pregnant Lupie. So sorry to sick to remember. Someone else will inform you soon. Bless you dear! I'm so happy for you!

magistramarla
07-06-2011, 02:47 PM
Girl,
I am so happy to see you here again, and I'm so very happy for you! You already have one child, right? This is great!

MTX has been used as a "morning after pill", and sometimes it just doesn't work and the baby goes on to be just fine. This will very likely be the case for you.
The high risk OB will be able to calm your worries and will follow your pregnancy. Let us know what he tells you.

It's great to have you back - I hope that you keep posting and let us know how everything is going.
Lots of Hugs,
Marla

tgal
07-06-2011, 03:09 PM
The fact that you are still pregnant is a good sign. As Marla said MTX is often used as "The Morning After Pill" so still being pregnant is a good sign! The high risk OBGYN will be good for several things. Yes, he/she will check everything to make sure no damage was done by the MTX (remember, still being pregnant is a good sign!) but also keep a watchful eye over the Lupus while you are carrying. You know my favorite saying "Don't borrow trouble". There is no need to worry right now because nothing is know except that your baby is a fighter and didn't let MTX kick it out!!

Let us know how it goes!

steve.b
07-07-2011, 01:30 AM
the other lady who is also pregnant is vannamazing.
she started her thread about 1 week ago.
maybe you two could communicate.

there is many cyber grandparents here wishing you the very best.

bunny28
07-07-2011, 06:17 PM
While I don't have experience with MTX and pregnancy, I wanted to tell you that I have a healthy three year old. Though I have only been diagnosed with lupus this year, I know now that I have had it for a very long time. I didn't have a high-risk OB.GYN but was absolutely lucky enough to have an Ob.GYN follow me from almost day one of this pregnancy as I had previous losses. Someone mentioned you already have a child so perhaps you are not worrying about this but I wanted to say that not all people with lupus have miscarriages and not all pregnancies in lupus end poorly. There were no significant complications with my son and I hope for the same or better experience for you. COngratulations and please let us know how it goes with your doc.
Bunny

justomegirlindallas
07-07-2011, 06:23 PM
Thank you - I didn't see that Vannamazing is on MTX. I can't wait to talk to her though. Thank you for the positive feedback. I have undifferentiated connective tissue disease with features of SLE and RA bit also both of my lenses are subluxating in my eyes. I had a subclavian artery thrombosis that required bypass a couple of years ago so I think in regards to pregnancy making sure that I dont have blood clots will be the disease related biggest concern though I'm not concerned about that in first trimester. I will say however, that there is never a "good time" to have a baby but I am 31 I do feel like my biological clock is running out of tick tocks... my spouse knows that the only way we're having a baby is by surprise because I am too nervous of a person to "plan" another baby. I will say that it will be our last. If I have this baby he is going to consent to tubal ligation or something at the end of the pregnancy. We do want another baby but I have always gotten cold feet when we get to the business end of making the decision. It may be a good thing too. When I was pregnant with my son I felt the best through that pregnancy I had ever felt in my life.

Gizmo
07-07-2011, 08:18 PM
I have undifferentiated connective tissue disease with features of SLE and RA bit also both of my lenses are subluxating in my eyes. I had a subclavian artery thrombosis that required bypass a couple of years ago so I think in regards to pregnancy making sure that I dont have blood clots will be the disease related biggest concern though I'm not concerned about that in first trimester.

First of all, congratulations! I hope you have a wonderfully uneventful pregnancy and a precious bundle crying in the middle of the night afterwards. My daughter also has undifferentiated connective tissue disease - but she also has a genetic disorder called Ehlers Danlos Syndrome. One of the possible consequences is eye lenses subluxating. My daughter's joints are very loose and sublux easily and her skin heals poorly. She also has multiple neurological problems and has had surgery on 3 joints. If your docs haven't been able to explain your eye problems, maybe Ehlers Danlos Syndrome is something to check out. Just a thought...

Saysusie
07-07-2011, 11:47 PM
Congratulations on your pregnancy. I am sorry to hear that your are dealing with so many other issues. I had never heard of subluxating eyes before and had to research it to get an understanding of if. "An opthalmologic subluxation is called ectopia lentis, an ocular condition characterized by a displaced or malpositioned lens within the eye.[4] (http://en.wikipedia.org/wiki/Subluxation#cite_note-3) Subluxated lenses are frequently found in those who have had ocular trauma and those with certain systemic disorders, such as Marfan syndrome (http://en.wikipedia.org/wiki/Marfan_syndrome), Ehlers-Danlos syndrome (http://en.wikipedia.org/wiki/Ehlers-Danlos_syndrome), (the condition mentioned to you by Gizmo) and homocystinuria (http://en.wikipedia.org/wiki/Homocystinuria). Some subluxated lenses may require removal, as in the case of those that float freely or those that have opacified to form cataracts"

I do hope that you have a very successful pregnancy, and joyous childbirth, and an extremely healthy child. Just as a precaution, Lupus patients who are pregnant are considered "High Risk", partly because of the possible complications due to the disease. But, primarily because you GP, GYN, and Rheumy should work closely together and monitor you closely in order to assure the health of the pregnancy and your health.
Successful pregnancies are now the norm with Lupus patients! I am sure that it will be the same for you! Again...congratulations!

Peace and BLessings
Namaste
Saysusie

justomegirlindallas
07-08-2011, 08:29 AM
I did want to post this article here because I imagine that I won't be the last young lady
http://www.biospace.com/news_story.aspx?NewsEntityId=18556020

Saysusie, the doctor still tests me for homocystinuria every so often but so far that has been negative. My joints, while a little hypermobile, I can't really say fit into an ED category fully, I do not fit into Marfan's category either. There is a surgery to fix the ectopic lentis but it was recommended to only do the surgery once the lenses have completely subluxated since its the zonules that are separating. replacing the lenses before they have subluxated completely adds too much risk.

thanks everyone.

justomegirlindallas
05-19-2012, 04:20 AM
38 weeks!!! :)

LenaT14
05-19-2012, 05:58 AM
Wow! Congrats....it encouraging as a 31 year old with connective tissue blah blah but I have fibro like symptoms as well. I have a serious case of baby fever and a new set of twins born to my cousin a week ago makes it worse! I hope to be well enough by this time next year to think about a baby. I'm in ATX and it sounds like you will just miss the worst of the miserable summer heat and being pregnant huh? My son was born in early sept and I thought I was going to kill someone in the heat and super preggo, so kuddos to a healthy pregnancy AND great timing :)

debbie-b
05-19-2012, 01:45 PM
38 weeks, that is awesome. Let us know as soon as the little one is here.

Debbie

Angel Oliver
05-19-2012, 03:54 PM
Just popping by to say Congratulations .
lots of love
Amanda.x

kim,l
05-19-2012, 05:11 PM
thats great i am so happy for you luv kim

steve.b
05-19-2012, 08:30 PM
i cant wait to be a cyber uncle.
i am happy you are progressing so well.

can you add more information about your aches and pains......
as we have a few members who are in early stages of pregnancy.
your information would be a great help to them.

magistramarla
05-19-2012, 09:36 PM
Hey Girl,
I am so happy for you! Every one of my babies was born at 38 weeks - all between 6 1/2 and 7 lbs. You have made it to a safe time to have the baby - good for you! I had two May babies - Heather on May 14 and Hillary on May 25.
Let us know when the little one arrives. I've just found out that my new grandbaby will be a girl! We are all so happy! I'm already finding girly things for her and I'm adding some rose-colored yarn into her baby blanket.
Hugs,
Marla

Blkbutterfly
07-30-2013, 07:32 PM
Congrats lady.... Well I'm preggers also and I'm scared out my mind. I'm very early like 3wks or so but anywho I had 2 children my daughter prior to my dx and my son who passed in march from congenital heart defects. I'm sooo scared out my mind. Didn't mean to scare you by any means just need someone to talk with whose like me and knows what I go through on a daily.. Much love

Jaynie
08-04-2013, 01:42 AM
Hi!

And congratulations! I have five children and each one has made my lupus improve. Juggling them was hard, but my life turned out just right. It definitely is possible! (I was lucky tho, never been on serious meds, just prednisone and nowadays plaquenil)

Jx

lucky7
08-04-2013, 12:53 PM
AWWWWW.........CONGRATS!!!! WOO HOO!!! SO SORRY though about your son and daughter, OMG, I CANT IMAGINE what you went through and are STILL going through....And will FEEL for the rest of your life. YOU are in MY HEART and MY THOUGHTS.... Im WISHING the BEST for YOU and your "precious one"...LOVE and HUGS, Jeannette XXX

Mica
08-04-2013, 01:06 PM
I am curious about how your lupus is with your pregnant? Did you doctor take you off of most your medications? I look at mine and most say you can't take them while pregnant so thats why i'm curious. From very early in my disease my doctor constantly told me(I was a teenager at the time) that I need to be a lot more careful because a pregnancy would just not be healthy for me. So now that i'm getting older(22) I try to get as much information from others who are pregnant and already have lupus.

lucky7
08-04-2013, 05:26 PM
Hi there Mica! I have been BLESSED with having birthed 2 children. However with THAT being said, I wouldnt have been this FORTUNATE IF I wouldnt have gotten pregnant yrs BEFORE my autoimmune diseases "kicked in" to full gear/diagnosed and caused me serious health issues. My Gynocologist (also OBGYN) has told me that Im lucky to have had my children at 17yrs and 22 yrs of age because of WHERE my illnesses have landed my body TO DATE. I had to have "exploratory surgery" over 1 yr ago due to some serious problems I was having. During it my Dr. discovered that with the state of my uterus and some other things found (due to all my inflammation/heath issues) I WOULD NOT have been able to carry children. She said its in BAD SHAPE and by the looks of it and how long Ive had serious health problems its been this way for a few yrs. The CHILD BEARING YEARS as they call them. I FEEL SO LUCKY and I KNOW I AM SO LUCKY. At 17yrs of age with the FEAR I felt being pregnant in high school I NEVER would have dreamdt that it was truely a BLESSING in DISGUISE. If you read up about Lupus and pregnancy you will find that alot of women GET their diagnosis during the child bearing yrs BECAUSE of thier disheartening trials and tribulations of trying to get pregnant AND trying to STAY PREGNANT. SO SAD and SO SORRY for these women. MY HEART GOES OUT TO THEM ALL............Also as your Dr said IT would BE HARD for you as well due to the CHANGES you go through. STRESSES your body is put through equals FLARE. I AM thinking of YOU and wishing YOU the BEST!