View Full Version : I have a, um, personal question about ulcers

12-21-2005, 06:12 AM
Have any of you had any ulcers in your private area? I mean on the inside. I get them in my nose and mouth, but last night dh and I decided to "play" (sorry trying not to be too graphic here) and afterward I was I guess you could call it spotting and it hurt "during". I've had a total hysterectomy (in 2001, ovaries and uterus removed) so the only thing I can come up with is maybe now I'm gonna have the fun of ulcers "down there". Has anyone else had this???
I'm really sorry about the details but I'm not sure whether to call the dr or if this just another one of those things to get used to. :(
Thanks a bunch!

12-21-2005, 08:25 AM
Hi Tracy :lol:
You are so precious. Do not feel disturbed about your question. How else could you get an answer without asking the question??? Almost all Lupus patients have experienced oral and/or vaginal ulcers at some time during the course of their illness.
Here is what I found out:
"Many couples experience some type of sexual difficulty when one partner has a chronic disease such as lupus. Sexuality may be affected by disease symptoms, medications and/or psychological concerns. Disease symptoms of lupus which may influence sexual activity include: oral ulcers, vaginal ulcers, arthritis, Sjogren's syndrome, and Raynaud's phenomenon. Each of these problems will be discussed in detail. Vaginal ulcers are rarely painful, but when they are, they can interfere with intercourse. A prescribed steroid cream or other medication can be used to treat them. Alternate forms of sexual expression can also be used until healing has taken place."
Lupus patients may also experience vaginal dryness which can cause slight bleeding. The dryness is generally due to a condition known as Sjogren's Syndrome. The vaginal dryness associated with Sjogren's syndrome responds well to the use of a water soluble lubricant which is absorbed and does not have to be removed. (Vaseline-like ointments should be avoided since they can encourage infection.) Water soluble lubricants (e.g. K-Y jelly) are available over the counter at drugstores or supermarkets.
So, you see, what you are experiencing is not at all uncommon. However, if it becomes worse, continues or if the over-the-counter remedies do not help, you might want to consult your doctor for some prescriptive remedies.
I wish you the best
Peace and Blessings

12-21-2005, 08:38 AM
Thanks Saysusie. you are the best. I've had the pain before but not the bleeding so that kind of freaked me out. Seems like it's always something new cropping up and it's getting OLD! I wasn't sure how to phrase the question without getting too graphic cause I didn't want to offend anyone or gross anybody out. LOL
BTW can I just say how awesome this sight is? I met another member here over the weekend. Cassady's family lives in my town and she came home to visit. She's just as nice and funny as online LOL Thanks so much for this site. :)

05-01-2006, 10:02 AM
I have a little...sore...that won't heal. It's just on the inside of my vajayjay. In the soft tissue. It freaked me out. The OB/GYN said it's a little cut and to use neosporin or A&D ointment. :? . I never thought in the world that it could be an ulcer! That makes perfect sense now.

05-01-2006, 10:13 AM
You are so welcome! However, most of the thanks must go to our Beloved Administrator who maintains this site for us free of charge :lol:
I am happy that you found a friend both here and close to home. That makes me smile.
Never be afraid to ask any question here - no matter how personal. That is what we are here for, to help!!

Have you found relief for your problem? I forgot to mention that we are often prescribed plaquenil for the ulcers that we get as a part of Lupus. They will also help to heal both oral and vaginal ulcers, but they take some time before they start working. In the meantime, you will probably need something topical for the pain etc.

Best Of Luck To You Both :D

05-01-2006, 10:22 AM
A&D, or Zinc Oxyide are okay. I'm instructed to use Tucks also. Mine is in a spot where it keeps getting irritated from bathroom visits. :(

I'm on Plaquenil so hopefully this will heal like the mouth and nose sores do. I'm just relieved to know what it is!

09-24-2006, 03:17 PM
OH honey your not alone...they hurt bad.

09-25-2006, 07:23 AM

And it hurts a lot. I'm so frustrated. I've tried all the ointments, Tucks, avoiding the area when wiping. No luck.

Friday I was in a hurry to get out of work and used the ladies room. I was being quick and wiped fast. I broke it open and bright red blood was everywhere.

Do they EVER go away?

I'm so glad there are others w/ this problem or I'd think I was the only one.

09-25-2006, 03:02 PM
I've actully coated them with vasoline to protect them from urine and that helped alot.

10-11-2006, 02:08 AM
Hi Tracy,

I get the ulcers down there too and in the anal area. I was going to ask if you have Sjogrens. I have Sjogrens along with SLE and the doctor told me that this is common to have this happen. I get them in my mouth, nose, eyes too. It is rough. I forget now what I use on them. Right now am having a brain fog situation going on lol. I use some cream but can not locate it right now and can not remember the name of it. I feel for you though big time. I hope that it clears up fast for you. Hugs, Kathleen

10-13-2006, 03:34 AM
I can't remember the name of the medication for the ulcers but I think mine started with Tr. Sorry I know that doesn't help. I don't have Sjogrens. As for your fog...ME TOO! I used to have to have me husband and daughter post notes around to remind me: eat, take medicine, shower, brush teeth and I could drive because I would forget how to get home. But all that is better now.
I hope you are better soon!
Have a wonderful week!

10-16-2006, 08:51 PM
I've had that it can be painful during sex and after i've had the spotting too. Try lots of lubricant it helps with the hurt during sex I find it feels so much better, as for after talk to your doc I don't get them much anymore but I did find that when I'm in a big flare I do get them still but in all fairness when I'm in that big of a flare my darling boyfriend won't be able ot get within two feet of me LOL

hope you get some better answers soon! But know that you are not alone

take care

10-19-2006, 07:02 AM
Wow, I never thought that this had anything to do with Lupus! How relieved am I now!
I have a new boyfriend, so things are quite frisky right now. But everyfew days I have to withhold and give myself time to heal because it is so tender and feels raw. I first noticed this with my ex at the beginning of this year. It feels like a blister or something and it gets inflammed. I usually just take anti inflammatories and rest for a few days and it clears up. I use aloe vera gel sometimes and it helps. It burns alot at first, but I wasn't sure what else to do.
I wasn't sure what it was from. I even got tested for STD's which came back clean!
I guess I should never be surprised when something new pops up. I should just come on here and ask. I applaud you for having the courage to do that.

11-20-2006, 03:21 AM
I am going to the docs tomorrow for an ulcer in the gynny region and I am so glad I am not alone. I felt like a freak and felt awful when my partner of 5 years wanted sex and I so wasn't up for it because of the ulcer! Thank you so much for being so open, I thought it was just me who had all these weird symptoms!
Cheers from australia
Lizzy bee

11-20-2006, 07:38 AM
Hi, Lizzy - you're certainly not a freak - a lot of women with lupus have this problem - so do women with Sjogrens, because both diseases can attack the mucous membranes. But a lot of the books only mention the mucous membranes of the mouth and nose, and don't mention other areas of the body can be affected too! I guess the authors are trying to be sensitive, but they would probably save women a lot of grief if they were more specific. Your doctor can prescribe creams to use, and soaking in a warm bath can also help. Just be careful to stay away from bubble bath and bath salt products until you heal up - they can irritate the tissues and make the problem worse.

11-23-2006, 05:38 AM
Hi Everyone

My poor hubby - he thought he did something wrong - especially every time we had sex - I would bleed and be in so much pain.

I have Sjogrens, and most likely Lupus, as I have many signs of it. Marycain, what a welcome relief to know others are like me, and I am not a freak.



11-29-2006, 09:54 PM
Has anyone else noticed that anytime you mention pain "down there" to your gyno you get tested for STDs? I did even 6 months ago, even while being with the same partner for 8 years! This has happened so many times I don't even argue, because they always say you don't know about your partner and that some STDs can hide for years, but I've been tested for so many years, it's just funny. I'm sure it's been Lupus the whole time.

I think one of the first symptoms I had from Lupus was dryness (with my new boyfriend - poor guy thought it was about him at first!). Of course, we didn't know this at first. Fortunately that guy stuck around and married me!