View Full Version : had a good rhuemy visit today

06-16-2011, 06:39 AM
i went to my rhuemy today, and had a very good visit.

i discussed lots of things, some of them i am adding here:

1. i questioned about taking a daily asprin, to help thin the blood.
i was told that if you take plaquenil at a dosage of 400mg a day, you have more blood thinning from them than 1 asprin. therefore it will have no effect.

2. i am taking "stevia" instead of sugar. 2 main brand names in australia are natvia and optvia. this is a natural sugar from the stevia plant. main benifit of this sugar is it helps to lower the blood sugar level. i was advised that this has worked well in my case. the levels are dropping, back to normal range. with no other medical intervention.

3. i have been flare free for about 12 months now. my blood results are excellent, everything except my dehydration levels is now in the normal range. if this continues until our next appointment, i will be able to decrease my methotrexate, from 20 mg. i will still need to take plaquenil for life. and probably about 5mg of methotrexate, but we will start the decrease.

i still have bad fibromyalgia issues that keep me out of work, and on the disability, but my lupus is being controlled by my medication.

i am sharing this, not to brag, but to let you know, that i have gone from serious organ involvement, to a stable control.
there is hope for all, that if your body accepts the medication, your symptoms can decrease. i know if i stop my medication, i will have serious health issues in a matter of weeks.

4. we discussed exercise. aquatic (slow, non strenuous) exercise is currently considered the best form of exercise for lupus sufferers. the reason for this is that you have full control on the amount of force you excert. also the body has boyancy in water. this reduces the stresses on the body. the best 2 form of water excercise are low impact aqua erobics and then casual swimming.

i hope that this information helps. remember that everyone is different. everyone reacts differently to lupus.

06-16-2011, 06:52 AM
That is GREAT news, Steve, and so encouraging for us all. It makes pills a whole lot easier to swallow!

Linda From Australia
06-16-2011, 06:53 AM
How wonderful for you Steve, your family must be rejoicing

06-16-2011, 08:38 AM
This is all such good news for me right now. I am in terrible pain and spasms in spite of so many meds. Today diagnosed with Fibromyalgia. I will truly consider aquatic exercise. My shoulder feel llike someone has vice grips on my spine and spasms radiate across both sides of spine. I need to read and learn how to deal with this. I am so proud of all you have overcome! I've used stevia. Good for you for working so hard.

06-16-2011, 11:50 AM
Hi Steve,

"Congratulations mate" .... terrific news for us all to hear and i hope the future carries on the same and carry on taking care how you have. X

06-16-2011, 12:22 PM
Wonderful, wonderful news! Thanks for Sharing that valuable information'

06-16-2011, 06:23 PM
Thank you for given me some hope, Would love to wake up and not worry about what that day is going to be like. Thanks

06-16-2011, 06:55 PM
I must say that what you said about aspirin must be different from doctor to doctor because my cardiologist and my rhuemy kept me on both aspirin and plaquenil. You know there are always little things that doctors do differently and this may be one of them.

Now that I am home on my computer instead of typing from my phone I wanted to make sure that you knew how very much I appreciated your post. So often we get down because we are going through so much and we can't see an end in sight but this thread reminds us to keep looking at the end of the tunnel. It reminds us not to give up and that is very needed sometimes.

06-16-2011, 08:45 PM
Good news! You are doing everything right, and it's wonderful to hear that you've got it under control.

06-18-2011, 03:04 AM
So happy to hear that Steve!!

06-18-2011, 04:42 PM
So happy to hear that Steve!!Nat you and steve have given the best news this week on the site and it's terrific to hear and i wish you both the best of luck with the future. xxx

06-18-2011, 04:51 PM
So glad to hear that things are going so well for you and i pray they will stay that way. Bonita

06-18-2011, 08:24 PM
steve glad to see you are doing so well i am happy for you interesting about aspirin and plaquenil i am on both my rheumi never said anything just must difference of opinion hugs

Dance in the Rain
06-19-2011, 09:59 AM
Thank you for sharing. This has given me hope that if I do get diagnosed, there may be something that will help my quality of life. It's wonderful news..thanks for sharing!

06-19-2011, 06:00 PM

With the right medication to what you have with Lupus and trying to lead a nice steady life but stress free, most likely alot of us would be in steve and nats position but it's terrific news for them both.

10-07-2011, 03:54 AM
i went to see my rhuemy agian today.

he went completely through all of my blood tests, and medications.

it would appear that my lupus is being held at bay.
so much so that today we started 1/2 doses of mtx, i am now on 10mg per week.

my fibro is still acting up, so i have had to modify some of my other medications, (but they are not as strong or dangerous as mtx)

if things stay in check, in 4 months, we will look at reducing my plaquinel as well.

the only down side is my "ibs" and "brain pauses" are not being controlled.
i have a neuro appointment in about 4 weeks, to check on the brain.
my rhuemy does not believe i can do anything about it, but agreed with me that a checkup cant hurt.

__________________________________________________ _______________________________

once again i must state that it is the drugs doing there job that has my health where it is.
for me the combination of plaquinel and mtx are working.

i am telling all of you, so you hear good news about what may be possible.

my overall health is still not as good as i need, (i still have serious issues), but my lupus is well and truely under control.

10-08-2011, 02:22 AM
Thanks, it's so good to read your good news. Plaq and MTX seem to be working with me also. My parkinson's seems to be moving forward. I can't seem to get there. Hope your neuro has good news too. I see mine on our Halloween. That's scary