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giggle
06-15-2011, 04:13 PM
I've been keeping this to myself for a while now.

At first when I developed tremor I was scared and wanted to diagnose it straight up with a strong sense that fast treatment would mean I could be back to me again.

But after a clear B12 test and MRI and CT scan... while technically a positive thing, sent me into a panic. Now it wasn't something clear cut. Now I was in trouble, because all clear cut options were gone.

What could it be?

Nonna mentioned Parkinson's and I am a little ashamed to say I ignored it. I am young and not only that.. I can't have parkinsons! Thats a non-curable progressive disease that would insure my decrease in independence and dammit I am aggressively independent.
I have searched the internet continuously, specifically ignoring anything to do with parkinsons.

This morning after my partner left for work, I dared to look it up. My heart sunk when I realised how many similarities I display and then it really hit me. I read that one very early sign is the loss of sense of smell. I all but lost my sense of smell months ago. I can barely taste anything anymore. What prompted me to see the doctor way back in the start ofthe year, was involuntary movements of my fingers. I just discovered this is known as pill rolling. Along with an internal trembling, a head tremor and arm tremor... I also recognised the slowing of my movements. And my gait... which ironically I noticed yesterday... my upper body is stiff and I dont move my arms. Would it explain why I feel weak at the hips?

If this is the case... if I have parkinsons... where do I go from here? How is it diagnosed? And I thought parkinsons progressed slowly? Admittedly it would have been more than a year since certain symptoms would have started... but would tremor have started within a year of first symptoms and would they get better sometimes? I thought if it was parkinsons, I would have it all the time to the same degree andit would only get worse.

: (

And to think, I was embarrassed about needing a cane. If I have parkinsons...

bunny28
06-15-2011, 04:38 PM
HI there;

I don't have all the answers for you but I couldn't read and not respond.

I can tell you my father-in-law was diagnosed with Parkinson's last year. His symptoms seemed to come on fast and progress pretty quickly so I am not sure that it does progress slowly. I did a project on Parkinsons when at university several moons ago but since his diagnosis I read one of Michael J Fox's books about his diagnosis. Other people observed him who hadn't seen him in a while at an event and they thought he was drunk. This was the final push to get him to seek diagnosis and treatment

I believe you would likely need to see a neurologist to be diagnosed. I have attached a link that explains that there is no one diagnostic test (sound familiar?) but has some other info.

http://www.umm.edu/parkinsons/diagnosis.htm

My best advice to you is not to sit and stew about do you or don't you have it? Broach the subject with your doctor ASAP and see where it goes from there.

There are medications which are supposed to slow its progress but some have other side effects like diskinesia (sp?) which means abnormal sort of movements,etc. There are also experiments ongoing every day thanks in large part to increased publicity by people like Michael J Fox and they seem to be making progress. I hope that this is not your diagnosis but if it is, I wish you every possible advantage of recent research and medications.

Here is something about the meds:http://www.webmd.com/parkinsons-disease/drug-treatments

My FIL is still himself in many, many ways. He moves a little slower and has more tremors. He isn't as talkative as he once one (my does this man love to talk!), and I think that is because it is harder for him to do it but for the most part he is still him. I don't want to scare you with this, in fact I am trying to reassure you...symptoms have come on but not everything has progressed super quickly. I do know that he has struggled emotionally coming to grips with this disease emotionally (understandably) so I would also suggest you accept counselling by a social worker, etc if offered if this does become your reality.


Take care and let us know.

lovedbyHim
06-15-2011, 04:54 PM
Oh goodness girl. I don't have any words of wisdom here except, write it all down and state the list to a doc you trust and don't cave in no matter how they respond. You have a real good strength in you and a great group of folks who care about you. You are in my thoughts so often. I hope you will keep us posted on what the doc says. When my thyroid was trashed, several docs blew it off and then someone spotted lumps all over my thyroid while I was having a heart cath. The truth will come out. I am praying and hoping in this. What ever that truth is, you will cross that bridge when you get there. We will be there with you too. (((hugs)))

Gizmo
06-15-2011, 05:13 PM
The sooner you get in to see the doctor, the sooner you can have an answer. Your primary care should be able to order a CT scan or MRI - I think Parkinsons shows up on one or both, and get you in to a neurologist. It sounds like things are progressing rather quickly, whether it's Parkinson's or something else, you need to get some help. I am so sorry that you have yet another thing to deal with, and that the possibilities are frightening for you. I know 2 people with Parkinsons. Both are older, but one still works as a pharmacist and climbs 14,000 ft mountain peaks. Please keep us up to date about what is happening with you!

Peridot20_Gem
06-15-2011, 06:18 PM
Oh Giggle,

I've answered some threads mate and i'm totally speechless on this one, your young and if you do have it and i hope to god you have'nt, all i can say is like the rest try to stay strong mate and see someone quickly and this is usually dealt with through a neurologist and please let us know mate when you do find out and don't hold things back.

We love you dearly on the site and you know whatever the out come you have our full love and support from all of us worldwide.

xxxxxxxx your way my dear friend ~Hugs~ Terry

magistramarla
06-15-2011, 09:31 PM
Giggle,
When I was seeing the mobility specialist in Houston, he was testing me for either Parkinson's or Spinocerebellar Ataxia. He tried me on a drug (Dopamine, I think) that would cause a change if it was Parkinson's. It didn't do a thing, so he ruled out Parkinson's. Genetic testing ruled out SA, so then he was stumped.
As everyone else has said, talk to your doc sooner rather than later.
Let us know what you find out, and remember that we are all here for you.
Hugs,
Marla

giggle
06-16-2011, 12:14 AM
Thanks guys, I am relieved to have told someone. I am fearful of telling anyone else, even my doctor. I've been throwing ideas around in my head all day... do I just come out and ask her straight up, could this be parkinsons and please refer me to a neuro asap...

I decided to go straight to asking her to refer me to a neuro asap and skip the question about parkinsons. I will write down all my new symptoms specifically and see where we go from there. It will be more than a month before i visit a specialist. Its going to be a week or more before my next GP appointment, she only works two days a week, she is booked up on my birthday, the thursday she works is a public holiday so she wont be in, so the following monday is when I am booked in to see her.

Thank you all for your well wishes and information. It seems like testing is straight forward, though not as definitive as I would have liked : ( . I read that it doesn't show any signs on mri or ct. I wondered if that was the case how the heck do they even test for it.

I've been trying to talk myself out of it all day. Telling myself my tremor is too fast, wouldn't it be a slow tremor? Wouldnt it be more obvious? etc etc

Its just a sick feeling deep down at the moment. Like when you know a relationship is failing but you dont want to admit it so you ignore all the signs... and then comes the day when your partner brings it up...

More than anything, I am worried about how it would affect my partner and my daughter. My partner has so far been supportive of the lupus and hashimotos... I wonder if parkinsons would be just that step too far.

Guys you are truly the greatest, thank you for being here for me. I think without you I would have lost my mind by now, or worse.

HUGE HUGS TO YOU ALL <3 <3

rob
06-16-2011, 04:49 AM
Hi Giggle,

I was having some scary neurological things going on a couple of years ago, and my neuro asked me if I had anybody in my family who has/had Parkinson's. I'm not one to be dumbstruck, or frozen in fear, but I was when I heard that question. I felt a cold, deep down sick feeling, just like you mentioned. I was convinced that Parkinson's was causing my symptoms. Fasy forward a bit- it turned out that I have Secondary Progressive MS, not Parkinson's.

It's kind of perverse to feel relief when one is diagnosed with something as serious as MS, but I was relieved to finally know. I never knew there was such a thing as overlapping autoimmune disorders (SLE and MS), but there is.

I guess I'm trying to say two things. First being that you should get on this ASAP and find out what it is, which it sounds like you are doing. The second point, is that I thought that my life was more or less over when I got the MS diagnosis. How many people could possibly survive with two of the worst autoimmune disorders you can have. Well, it's been 7 years since the SLE diagnosis, and over two since the MS one, and I'm coping, living life, and doing pretty well.

Whatever it ends up being for you, know that you can handle it. I know the fear of the unknown and the uncertainty of what you may have going on is scary as hell, but you will get it figured out, and then you can do what you have to to treat this, and get on with your life. You will be there for your partner and your daughter.

Rob

steve.b
06-16-2011, 05:16 AM
((( H U G S )))

there is other possabilities.

remember there is 63 auto immune disorders.
many of the symptoms overlap.

get your referal, and see what happens.

please do not over stress yourself.
as mari says ... do not borrow trouble.

Peridot20_Gem
06-16-2011, 09:26 AM
Rob,

What you've stated is true, you get so many different symptoms sometimes your head can wonder all over the place thinking the worst thing and in one way i'm glad it was MS concerning yourself although that's a bad enough disease to deal with daily.

I just hope Giggle turns out ok being so young.

giggle
06-16-2011, 03:09 PM
Im not that young anymore, I will be 30 in just a few days!! LOL A lot of my friends are younger males and I am getting ribbed for going into my "dirty thirties" lol

Thanks guys... thanks Rob : ) Hearing your story gave me a bit of hope. Its so weird to think I could ever prefer MS, but I would you know, I understand your relief completely. Both my MRI and CT scan came up clear though... this is what worries me.

I've got a tense month ahead of me lol ah well, not much I can do about it.

omg! 30 is still young! It was my favorite birthday! 30 meant that I could be me. It meant being comfortable in my own skin. 30 meant that I had survived all of the BS and made it through to a place where I didn't care what people thought about me anymore. 30 meant freedom. 30 meant joy. 30 meant settling in to just being me. You will love 30!

Peridot20_Gem
06-16-2011, 03:19 PM
Well Giggle,

You look great on 30 mate, christ you only look about 22-23 on your pic, that's why i've been saying young but 30 ah old either..wait till you reach my age 90.lol

Try and stop positive giggle because Rob did give some great sound advice and you may be getting worked up and worried for nothing and i hope nothing comes of it in that way for you and you know what stress does makes Lupus play up more.

Hugzzzzzz you way mate. xxxx

tgal
06-16-2011, 03:34 PM
Hey Gizmo,

I will keep my fingers crossed. Dont borrow trouble. I have many of those issues simply from the lupus. Be informed but not scared. it will be ok. It is enough to deal with knowing what we have already so don't add more to it needlessly. Remember that I am here for you

giggle
06-17-2011, 04:10 AM
I also sound about 15 on the phone, yet im a receptionist lol I just look young, i think its the chubby face. You have all given great support and advice : )
I dont think i am worrying unnecessarily... i have these things going on, my biggest worry is that they will nevergo away... to be honest, i childishly insisted on a cure.

Peridot20_Gem
06-17-2011, 02:40 PM
Giggle,

You've just hit it on the head mate knowing your main worry like we all is the symptoms will never go away, now that's a worry mate. xxx

lovedbyHim
06-17-2011, 03:12 PM
I think we all wanted the miracle cure. I've tried, homeopath, healing services, exercise and healthy eating, counseling to manage stress, etc. Everything except an exorcisim. Lol. Acceptance is hard when it keeps CHANGING! Ugh! I try so hard to stay in the here and now, because it keeps me sane. Well, kinda sane (grin). Here is a statement someone said to a client of mine and I love it. "if you have one food in the past and one foot in the future, you will pee all over the moment." Can I say pee on this forum? Sorry but I can't tell you how true this is.

Hugs to you giggles! Enjoy that new job! Keep us posted.

Peridot20_Gem
06-17-2011, 03:34 PM
Tammy,

Your right there mate the MIRACLE CURE but we have to do with what's best. Well i think it's me who needs an Exorcisim for some reason as ste only mentioned me joining the church again lastnight.

My LANGUAGE must be getting to him plus the church would cave in if i attended. (Shock) lol

giggle
06-17-2011, 05:08 PM
Ha ha tgal : ) I am pretty chuffed with turning 30. It feels like changing into adulthood, I mean for real, not this fake adulthood that is the 20's... people in their 20's are still running around drinking and behaving like fools...

Though I still play video games and get together with other nerds to play war games with little plastic men ; )

And who needs to drink anyway... when you already look and sound like you are drunk! lol

rob
06-17-2011, 05:13 PM
I think we all wanted the miracle cure. I've tried, homeopath, healing services, exercise and healthy eating, counseling to manage stress, etc. Everything except an exorcisim. Lol.

An exorcism usually isn't recommended unless your head starts spinning around while projectile vomiting pea soup on everyone...

On a serious note, Giggle, try to take things one day at a time, and one appointment at a time. All of this can be really overwhelming. If you can break things down into smaller, more manageable pieces, it will help. And of course, talking about it with others helps too.

Rob

rob
06-17-2011, 05:14 PM
Ha ha tgal : ) I am pretty chuffed with turning 30. It feels like changing into adulthood, I mean for real, not this fake adulthood that is the 20's... people in their 20's are still running around drinking and behaving like fools...

Though I still play video games and get together with other nerds to play war games with little plastic men ; )

And who needs to drink anyway... when you already look and sound like you are drunk! lol


What wargames are you into?

Peridot20_Gem
06-18-2011, 03:38 AM
An exorcism usually isn't recommended unless your head starts spinning around while projectile vomiting pea soup on everyone...

On a serious note, Giggle, try to take things one day at a time, and one appointment at a time. All of this can be really overwhelming. If you can break things down into smaller, more manageable pieces, it will help. And of course, talking about it with others helps too.

RobRob, that is my reactions mate when i've lost the plot (wink) lol

lovedbyHim
06-18-2011, 04:52 AM
If this nausea and headache don't soon lift, I'm sure the I still spew green muck and my head is about to spin. Do you know any good priest?

Peridot20_Gem
06-18-2011, 07:10 AM
Good one Tammy,

Before you know what... there'll be a vicar joining the site. lol

tgal
06-18-2011, 07:42 AM
For me, I have to look at this disease much like I looked at stopping the drug use 20+ years ago. I can’t look at “forever” or “in 10 years” or it is more than I can stand (and most likely not true). I deal with it one day at a time. TODAY I am coughing and having a difficult time breathing”. TODAY I feel pretty yucky. Looking too far out makes no sense with this disease. We have no idea what kind of meds or treatment will be available for us 5, 10 or 20 years down the road. I won’t “borrow trouble” and worry about things that may never come to pass.
Yes, I deal with this as I would any other 12 step program. Today this is how I am. Tomorrow is way too much to deal with.

giggle
06-18-2011, 06:10 PM
Hey Rob,

Perhaps embarrassingly... warhammer. Though with waylands recent issues with GW... might be looking else where soon.

Lol Tammy... I cant even imagine it, you seem like a saint to me.

Tgal... Im used to ignoring all my issues... cause when it comes down to it; you can ignore pain, you can ignore nausea, you can pretend you aren't dizzy and general brain fog can be covered up or worked around with diaries and phone alarm reminders etc. I've done this for years and no one has ever really thought I was sick. Ditzy or stupid maybe, but never sick. Tremors though, and stumbling like you are drunk, slurring speech like you are drunk and having cognitive issues so extreme they feel like you are losing yourself... they cant be ignored or covered up. If I were to change tactics to one day at a time, I wouldn't be going to work anymore. Next week I am going to apply for disability, hopefully temporary at least until I can study something else that will allow me some freedom and flexibility. Unfortunately I cant take it one day at a time, I have to move my family to another city in the months to come, this takes planning, so does doctors appointments and booking travel to get to those appointments. And should I be in threat of near future decline, many arrangements will need to be made for the future. My daughter has a condition that needs monitoring as well and will require surgery in the years to come. I am her only care giver and the only one that knows about her condition, its progress and what needs to be done in the future. If I am to decline, all these things need to be sorted in advance... especially legal documents signed before any dispute can be made regarding my ability to do so! Her biological father is scum and needs to be kept mostly out of the picture. This is a big legal issue in the making and will require my immediate action and some intelligently plotted maneuvers to keep her safe. Especially considering his parents are extremely well to do. He himself however is a lazy bum that doesnt even work because of a 'bad back' which keeps him from working any kind of job... but doesnt keep him from martial arts, sword fighting, making swords or building massive tent cities for medieval events. He had a very well paying job with the promise of advancement and funny... but the very moment his child support was due to rise he quit his job. Now his 80grand a year plus girlfriend supports them both.
I do appreciate your advice though : ) Maybe when I have my diagnosis and everything sorted, taking it a day at a time will be in the cards.

tgal
06-18-2011, 07:47 PM
Hey Rob,

Perhaps embarrassingly... warhammer. Though with waylands recent issues with GW... might be looking else where soon.

Lol Tammy... I cant even imagine it, you seem like a saint to me.

Tgal... Im used to ignoring all my issues... cause when it comes down to it; you can ignore pain, you can ignore nausea, you can pretend you aren't dizzy and general brain fog can be covered up or worked around with diaries and phone alarm reminders etc. I've done this for years and no one has ever really thought I was sick. Ditzy or stupid maybe, but never sick. Tremors though, and stumbling like you are drunk, slurring speech like you are drunk and having cognitive issues so extreme they feel like you are losing yourself... they cant be ignored or covered up. If I were to change tactics to one day at a time, I wouldn't be going to work anymore. Next week I am going to apply for disability, hopefully temporary at least until I can study something else that will allow me some freedom and flexibility. Unfortunately I cant take it one day at a time, I have to move my family to another city in the months to come, this takes planning, so does doctors appointments and booking travel to get to those appointments. And should I be in threat of near future decline, many arrangements will need to be made for the future. My daughter has a condition that needs monitoring as well and will require surgery in the years to come. I am her only care giver and the only one that knows about her condition, its progress and what needs to be done in the future. If I am to decline, all these things need to be sorted in advance... especially legal documents signed before any dispute can be made regarding my ability to do so! Her biological father is scum and needs to be kept mostly out of the picture. This is a big legal issue in the making and will require my immediate action and some intelligently plotted maneuvers to keep her safe. Especially considering his parents are extremely well to do. He himself however is a lazy bum that doesnt even work because of a 'bad back' which keeps him from working any kind of job... but doesnt keep him from martial arts, sword fighting, making swords or building massive tent cities for medieval events. He had a very well paying job with the promise of advancement and funny... but the very moment his child support was due to rise he quit his job. Now his 80grand a year plus girlfriend supports them both.
I do appreciate your advice though : ) Maybe when I have my diagnosis and everything sorted, taking it a day at a time will be in the cards."

"One day at a time" doesn't mean you ignore life or stop planning. When I was in addict mode, and when I first became ill, I ignored everything! I lived with my head in the sand and thought everything could simply go on without me paying attention. One day at a time doesn't mean ignore anything. It means taking control of your life DAILY and doing what you have to do today because we have no idea how this is going to end.

I think there is some confusion as to what "one day at a time" means. One day at a time does not mean that we don't plan for our lives. It does not mean that we are not responsible human beings, parents, siblings and friends. One day at a time simply means that I don't look down the road and see the worst anymore. I have no idea where my disease will be 10 years from now nor do I know what medicines will be available. One day at a time means that tomorrow isn't planned for me but I have today completely. Today I can get things set up for how I am going to take care of my daughter since I lost my job.

You were not around when I was going through what you are going through but I hear my story in yours often. "I can't leave my job because I am the only income in my home". In the US you can't work and get disability. For over a year my daughter and I LIVED on $300 a month, yes, a month. Guess what? We made it. I found out a lot of the things that I thought were necessities were really luxuries. My daughter and I learned how to make each and every moment count without needing expensive things to entertain us. I have debt out my a** because when I lost my job due to my illness I also lost my insurance. After fighting for a year for Disability I finally got it but the medical coverage will not kick in until Oct 2012. What I am saying about living for today means simply that you have to be able to live in the moment when discussing the emotional part of this disease. You must prepare for the future but you don't have to dwell in the details. None of us know what tomorrow will bring health wise.

Getting your life together is what comes from Living One Day at a time. Running around in circles and borrowing trouble simply leads you back to where you started.

Just my 2 cents worth

tgal
06-18-2011, 07:59 PM
Just ignore me today. I know I am not being clear. I am sick tonight. Maybe tomorrow I can explain better

giggle
06-18-2011, 08:22 PM
Hey tgal,
I didnt mean to say you were suggesting that one day at a time means ignoring everything... : )
I meant ignoring my illness is my current tactic and it has worked generally for a long time. However, with my recent change of symptoms I can no longer ignore my illness and pretend everything is alright. This is where is gets frightening for me, because I can't be any other way other than to soldier on regardless of illness. The idea that I wont be able to do that in the future is daunting. And its not really a matter of borrowing trouble or worrying for a distant future... this is here now. Its probably been coming on for some time and I havent paid it due attention.

This is the only place I have mentioned my concerns, I really just wanted somewhere to utter the words without being told I am stupid. If you knew me in person... you would know borrowing trouble is the last thing I am up to. I am more likely to forget issues and months later bring them up to be scolded by my doctor for not mentioning earlier.

tgal
06-18-2011, 09:15 PM
Oh I wasn't jumping on you at all! You actually remind me much of myself in how I dealt with everything for a long time. Not working wasn't an option (LOL that is what I told myself) until one day the choice was taken from me. I completely understand what you are saying when you said "I can no longer ignore my illness". I ignored it for years and, for the longest time, most people didn't even know I was sick. I was a good little soldier and nothing was going to get in my way. I ignored it long enough that I let it really destroy my body (then I found idiot doctors that continued the process of destroying my body).

I just want you to understand I wasn't in any way saying you were wrong. I completely understand where you are coming from

lovedbyHim
06-19-2011, 02:33 AM
This truly is a wonderful place to vent and be heard. Most folks out there get sick of hearing us(grin). I have a natural tendency to wallow in worry, if I don't unload it. The "what ifs" will consume me. I'm reading a book on how to suffer well (giggling). I'll let you know how it goes. Here's a kiss for both of you! x

rob
06-19-2011, 06:00 AM
Hey Rob,

Perhaps embarrassingly... warhammer. Though with waylands recent issues with GW... might be looking else where soon.

Wow,

A cute girl who likes Warhammer? Heck, there's a dozen guys in my gaming club who would get down on one knee and propose to you sight unseen!
(insert smiley face)

Rob

Peridot20_Gem
06-19-2011, 09:17 AM
Mari & Giggle,

With what you've both said lifes been hard on both sides and it's nice on the site where we can express our daily concerns and issues we've had to deal with and issues happening now.

This is truely what i admire about the site and member's expressing themselves and i've even mentioned things on here that my hubby and councillor only new about...you all give me so much trust and in life that's goes a very long way.

Hugs to you both for being so open. xxx

Dance in the Rain
06-19-2011, 09:40 AM
...to let you know that I am thinking of you and I hope you find out whats happening ASAP.
Cheers,
D

tgal
06-19-2011, 01:32 PM
See, I now know why none of my posts were making sense. I just left the ER and I have acute bronchitis most likely brought on by my attempt to spend a couple of days in the water park. I think that will be all I will say on the subject right now because anything else will just come out mean.

Hugs to all of you

Peridot20_Gem
06-19-2011, 01:47 PM
Hello Mari,

Sorry to hear you've got bronchitis have they given you anything to help it. xxx

Nonna
06-20-2011, 12:13 AM
Well, i've been absent from this thread. Shame on me. I've had my own problems lately. I'm so sorry I missed this.

Tremors and balance issues, slow and fast tremors, mords all wixed, typing words that were supposed to be other words. I still function, I still work.

See the doctor, it took mine a long time to say parkinson's and still he's not sure. I noticed symptoms in my early twenties. I'm 63 now. I also have ananomally in my brain. They did MRI's for me. It's not the end of the world, especially with Lupus. It's just another problem to deal with.

As Mari said it's one day at a time, deal with the present not the whole picture. When my Dad passes I'll be responsible for my Mom. That scares the hell out of me. I try not to think about it and just try to get through the week. It's 3 AM Monday morning. I now have to make it to Friday, that'smy goal. Get through the week at work.

Giggle I think there's a song- don't worry about tomorrow, just live for today.

Hugs


Toni

Peridot20_Gem
06-20-2011, 10:23 AM
Toni,

That's a good saying mate (don't worry about tomorrow, just live for today) as i've noticed getting through one day with Lupus alone is an achievement. xxx

giggle
06-21-2011, 12:06 AM
Hi guys,

been away for a few days so have neglected my thread. Went away for my birthday, it was fantastic, I have never felt more relaxed. And I had some alcohol for the first time in a while... it made my tremor seem worse. : /

Tgal... I thought maybe I had offended you : ) Sometimes I skip out concepts in my conversations that I thought in my head and in the end it doesnt make as much sense to others as it did when I thought it up. Does that even make sense? lol

Rob... thats why I am careful what gaming clubs I am in! It wouldn't matter what I look like, the fact I am female and into gaming makes all the difference lol Tis why most of my friends in the 'real world' are younger than me and male, its the typical gaming demographic. Im a little outside the norm. lol

Thanks Nonna : ) Like anything, whether its lupus or something else, waiting for the diagnosis is perhaps the most difficult part. I did however broach the subject with my partner... who said it wouldn't matter if I had something like parkinsons or MS or anything like that... as long as I didnt become bitter and lash out... he will still always be there for me : ) So this relieved a lot of my concern about the whole thing. I also fairly quickly reassured myself work would not be impossible, I would just need to change careers... which I intended on doing anyway.

An update... tomorrow I find out if the other office girl is going to be coming back part time. Fingers crossed she is : ) I will get two days off a week, which will be a significant improvement and allow me to study part time. We are still waiting to hear if we got a loan to move to brisbane.

steve.b
06-21-2011, 12:44 AM
thinking of you.

lovedbyHim
06-21-2011, 02:27 AM
You sound so refreshed giggles! How happy I am for you that you were told it wouldn't matter if it was ms or parkinsons. Good man!

giggle
06-21-2011, 03:50 AM
You have no idea Tammy : D Im very happy.

Peridot20_Gem
06-21-2011, 09:09 AM
Hi guys,

been away for a few days so have neglected my thread. Went away for my birthday, it was fantastic, I have never felt more relaxed. And I had some alcohol for the first time in a while... it made my tremor seem worse. : /

Tgal... I thought maybe I had offended you : ) Sometimes I skip out concepts in my conversations that I thought in my head and in the end it doesnt make as much sense to others as it did when I thought it up. Does that even make sense? lol

Rob... thats why I am careful what gaming clubs I am in! It wouldn't matter what I look like, the fact I am female and into gaming makes all the difference lol Tis why most of my friends in the 'real world' are younger than me and male, its the typical gaming demographic. Im a little outside the norm. lol

Thanks Nonna : ) Like anything, whether its lupus or something else, waiting for the diagnosis is perhaps the most difficult part. I did however broach the subject with my partner... who said it wouldn't matter if I had something like parkinsons or MS or anything like that... as long as I didnt become bitter and lash out... he will still always be there for me : ) So this relieved a lot of my concern about the whole thing. I also fairly quickly reassured myself work would not be impossible, I would just need to change careers... which I intended on doing anyway.

An update... tomorrow I find out if the other office girl is going to be coming back part time. Fingers crossed she is : ) I will get two days off a week, which will be a significant improvement and allow me to study part time. We are still waiting to hear if we got a loan to move to brisbane.Hello Giggle,

I am pleased you enjoyed your birthday and i hope you let your mind wonder from everything else going on and having abit of drink won't hurt you.

What i am really pleased about is hearing more of a positive attitude and thanks to you partner for showing so much love and support...which should do you the world of good whatever the outcome.

All my love Terry xxxxx

Corella
06-21-2011, 10:49 PM
You have no idea Tammy : D Im very happy.

Giggle, I hope you dont mind me asking you but is that your dog in the photo and is it a greyhound or whippet? I love greyhounds and whippets and have had one brindle greyhound called 'Caesar' and I had a blue and white whippet bitch called 'Rema' - its gorgeous dog in your photo.

Peridot20_Gem
06-23-2011, 04:29 PM
Come on Giggle answer Sam what breeds your dog mate...i'd say a greyhound as the face is longer than a whippets but i could be wrong.

There's loads of people walk whippets and greyhounds here.

lovedbyHim
06-23-2011, 06:00 PM
I'm still laughing about your word for a female dog. One of my clients called me that name when they were not doing well. Ahahahahaha...

giggle
06-24-2011, 02:10 AM
Oops : ) sorry guys.

Its a whippet...not a very good one. I bought him as a show dog and he hasnt worked out so I need to find him a home... which is apparently tough, no one is interested in male whippets!

Peridot20_Gem
06-24-2011, 03:45 AM
Oh Giggle,

It would be a shame to cast him off...he's totally gorgeous mate and beautiful colour. xxx