PDA

View Full Version : new member



lupus27
05-20-2011, 01:15 AM
Dear All

I am a new member to the group and also have discoid lupus. I live in Cape town and attend the support group in Retreat. My sister passed away 14 years ago from systemic lupus.

Enjoy the day

steve.b
05-20-2011, 04:45 AM
welcome, i am sorry for your loss.
it is sad to hear of a lupus death.


you will be happy to learn that medication has come a long way in the last 14 years. normally lupus is not life threatenning nowdays. it is life changing, but with proper medication, most people live to a ripe old age.

Peridot20_Gem
05-20-2011, 06:12 AM
Hi Lupus27.

Welcome to WHL and it's lovely to have you with us, sorry for the loss of your sister and i do hope the support group helps you in many ways.

Feel free to venture throug the threads and it will be nice getting to know you.

Terri xxx

tgal
05-20-2011, 07:32 AM
Welcome to WHl! I too am sorry for your loss. Please make yourself at home. Feel free to look at the old threads or start new ones if you would like. I look forward to getting to know you

Gizmo
05-20-2011, 09:01 AM
Welcome from another newbie! This is a great site with lots of good info and caring people. I lost my brother 8 years ago, when he was 28. He died in his sleep and the coroner couldn't figure out why. I understand your pain, it is terrible to lose a sibling. Hope you stick around and share your story with us.

~LUVMYFLOWERS~
05-21-2011, 03:03 AM
Hi Lupus27, I would like to also say Welcome to Whl! And i am so sorry to hear about the loss of your sister. I also lost my only sister only a year ago, not to lupus but a fatal car crash.
So i do understand you pain. I look forward to getting to know you.
Hope you have a great ady!!! ~Diane~

Saysusie
05-21-2011, 01:02 PM
Welcome to our family :-)
Please take your time and cruise around our site. You may jump into any conversation that you wish or start one of your own. You will find that there is always someone here and that the people here are kind, comforting, informative, and caring.
I am so sorry to hear of the loss of your sister to this disease. I lost my daughter to Lupus, so in a small way, I can understand your feelings of loss. I am glad that you found us and that you decided to join our family :-)

Peace and Blessings
Namaste
Saysusie

Peridot20_Gem
05-22-2011, 02:47 AM
Hello Lupus27,

How are you feeling now since joining our forum and i do hope you a little less pain free.

~Hugs Terri~ xxx

lupus27
05-22-2011, 11:56 PM
Hi guys

Thanks so much for the warm welcome! Feels good to know there is people out there that i can relate my stories to. And hopefully i could learn from you guys i am new in this.

In South Africa people don't really want to know about lupus. My parents runs a support group but people just really don't want to join. In Cape Town most people are still afraid of coming out to say they have Lupus. How does people react when you mention the word Lupus?

Peridot20_Gem
05-23-2011, 03:01 AM
Hello Lupus27,

Your welcome that's what we're all here for to help one another and to give advice through experiences.

Your home town is'nt the only place where people won't say they have it, here in the uk it's treated but you never hear anyone say they have it and it was'nt till i saw my psychiatric doctor last week and updated him, that he came out and told me it's not recognised as an illness in this country either and all you get here is councilling for the Disease.

I've mentioned the word to a couple of people and all the answer as been you do look healthy but i'd say the state of my face shows something is wrong, either i need double glazed glasses when i'm looking at myself in the mirror or those do who say it.

Your not on your own concerning this, it's happening in loads of country's around the world as so many member's who tell you plus there's threads up abit it, it just gets me angry the way we suffer and it's not recognised.