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giggle
05-15-2011, 04:19 PM
I have been trying for some time now to pinpoint the causes of my tremors and variable cognitive levels. Nothing came up on either CT or MRI.:grumpy::grumpy:
So now I am looking into other possibilities.
My doctor gave me a call this morning to find out how I was going... I really love my doctor :biggrin: She has a baby so only works mondays now and when I told her I hadn't come in yet because I didn't have the money because they took away health support because I started working... she told me she could bulk bill me anyway! She is an angel.

Anyway... any CT scan I have ever had and now MRI has always come back with sinusitis. Every day of my life I have sinusitis to some degree... it causes this pinched dry feeling in my nose, sore gums/jaw/cheeks/ears, a horrible constant pressure in my sinuses, bleeding gums and a daily on and off smell of blood, often accompanied by the taste of blood trickling down my throat. I often find swallowing difficult as the muscles in that area just will not work half of the time. I choke very easily. In winter I will occasionally have a full all out nose bleed. I have been hospitalised at least three times for severe labyrinthitis and there are more times than that where I just could not be bothered with the hassle of trying to get ER doctors to listen to me when I tell them what is wrong because they cant SEE it, they ignore it.

This is just something I have accepted, doctors have tried to put me on antibiotics but it does nothing. I have googled sinusitis and it says it is normally caused by infection but can also have systemic origins.... but no sources go on to mention the systemic causes.

Im wondering if sinusitis could be an indicator of something else?

I dont even remember what it is like to have a clear head.

Peridot20_Gem
05-15-2011, 04:56 PM
Hi Giggle,

That was good of your doctor mate to sort you out in that manor, good on her.
I've got Sinusitis and mine comes with my TMJ Disease you can get it naturally or connected with that and it can cause nose bleeds but also Lupus can cause nose bleeds also.
With what you've just said you suffer i'd ask your Doctor to be refered to ENT to get it double checked with TMJ Disease also, i get swelling around the eyes also which is fluid building up during the night plus the odd bruised eye of blood vessels breaking.

Giggle antibiotic's won't help it anyway mate it's just a problem we have to cope with daily but i am sorry your going through this lot besides and i really to sympathize having it myself, the trouble is having so many different issue's going on from one day to the next you can never tell which ones playing up.

TMJ Disease can form through Lupus or naturally, the same goes for Sinusitis and refering the nose bleeds Lupus can cause that also, it's like i stated to Maryalice40 this Disease as alot to answer for, for what we go through.

I'll add info below for you mate. ((Hugs Terri)) xxxx

Peridot20_Gem
05-15-2011, 05:00 PM
SINUSITIS SYMPTOMS

Sinusitis is inflammation of the linings of the sinuses that surround the nose. Common symptoms include a tender face and a blocked nose. It's often caused by an infection.

Where the sinuses are found
About sinusitis
Symptoms of sinusitis
Causes of sinusitis
Diagnosis of sinusitis

About sinusitis

What are sinuses?
The sinuses are air-filled spaces within the bones of your face that open up into the nasal cavity. They are lined with the same membrane as your nose. This lining is called the mucous membrane and it produces a slimy secretion called mucus to keep the nasal passageways moist and to trap dirt particles and bacteria.

You have four main pairs of sinuses.

The maxillary sinuses are in each cheekbone.

The frontal sinuses are on either side of your forehead, above your eyes.

The smaller ethmoid sinuses are behind the bridge of your nose, between your eyes.

The sphenoid sinuses are between the upper part of your nose and behind your eyes.


The location of the frontal, ethmoid and sphenoid sinuses


The location of the frontal and maxillary sinuses

What is sinusitis?
Sinusitis is inflammation of the lining of one or more of your sinuses.

If your sinusitis lasts less than eight weeks (or less than 12 weeks in a child) it's called acute sinusitis. If your sinusitis lasts three months or more you may have chronic sinusitis. This is where the lining in your nose and sinuses is thickened and constantly inflamed. The medical terms acute and chronic refer to how long the condition lasts for, rather than how severe it is.


A maxillary sinus

Symptoms of sinusitis

If you have sinusitis your symptoms may include:

pain and pressure in your face, which is worse when you lean forwards

a blocked nose with green or yellow mucus, which can drain down the back of your nose into your throat and may cause a sore throat and cough

a headache

less common symptoms of sinusitis include tiredness, a reduced sense of smell, bad breath (halitosis) and a fever

The pain you have will depend on which of your sinuses are affected.

Frontal sinusitis can cause pain just above your eyebrows, and your forehead may be tender to touch.

Maxillary sinusitis can cause your upper jaw, teeth and cheeks to ache and may be mistaken for toothache.

Ethmoid sinusitis can cause pain around your eyes and the sides of your nose.

Sphenoid sinusitis can cause pain around your eyes, at the top of your head or in your temples. You may also have earache and neck pain.

On very rare occasions, a sinus infection can spread to the bones of the face or the membranes lining the brain. Also very rarely, sinusitis can spread to form a pocket of pus (abscess) in the eye socket, the brain or a facial bone. If you develop swollen eyelids while you have sinusitis you should see your GP immediately.

Causes of sinusitis

Sinusitis is often caused by an infection of the mucous membranes with a virus, bacterium or fungus. Most people with acute sinusitis have had a viral infection such as the common cold. During a cold the mucous membranes become swollen and tend to block the openings of the sinuses.

Irritants and allergens can inflame the linings of your nose and sinuses, causing sinusitis. Some examples of irritants include:

airborne allergens such as grass and tree pollen

smoke and air pollution

sprays containing chemicals (eg household detergents)

Enlarged adenoids and growths on the mucous membranes, such as nasal polyps, may block the openings to the sinuses and cause sinusitis.

People with certain medical conditions, such as cystic fibrosis, are more likely to get sinusitis.

Diagnosis of sinusitis

Your GP will ask you about your symptoms and will examine you. He or she may also ask you about your previous illnesses and operations.

Your GP will usually be able to diagnose acute sinusitis just from examining you and no further medical tests are usually necessary.

If you have chronic sinusitis and if your treatments haven't worked, your GP may refer you to a doctor who specialises in ear, nose and throat conditions. You may have an X-ray to help determine the cause of your chronic sinusitis. The specialist may recommend a nasendoscopy (also known as nasal endoscopy), where he or she will insert a small, flexible tube with a light and a camera lens at the end (endoscope) into your nostril to look at the inside of your sinuses.

Treatment of sinusitis

Most people with acute sinusitis get better without treatment. However, if your symptoms continue for more than a week, or seem to be worsening, you may wish to see your GP.

Self-help
Some people find that breathing in steam from a bowl of hot (but not boiling water) provides some relief from the symptoms. However, this isn't scientifically proven. Try sitting in your bathroom with the hot shower running. Putting a warm flannel on the areas of your face that are painful and sleeping with your head and shoulders propped up with pillows may help, but there is no scientific evidence that this works.

There is some evidence that using salt-water nasal sprays or drops may help with the symptoms of chronic sinusitis. These are available from pharmacies without a prescription.

Medicines
Over-the-counter painkillers such as ibuprofen or paracetamol may relieve pain and bring your temperature down if you have a fever. Always read the patient information leaflet that comes with your medicine and ask your pharmacist or doctor for advice.

Several nasal sprays are available over-the-counter and on prescription from your GP. These include decongestants (eg Sudafed) and mild steroids (eg Beconase). Your GP or pharmacist can recommend the most appropriate remedies for you.

If your GP thinks your sinusitis is caused by a bacterial infection, or you develop a secondary bacterial infection due to your inflamed sinuses, he or she may prescribe antibiotics. However, research shows that eight out of 10 people with acute sinusitis get better within two weeks without antibiotics.

If you have sinusitis and an allergy then you may find that controlling your allergy helps to reduce the symptoms of your sinusitis. Antihistamine tablets such as loratadine (eg Clarityn) may help to do this.

Surgery
If you have chronic sinusitis that doesn't get better with home or medical (drug) treatments, your specialist may suggest that you to consider surgery.

In functional endoscopic sinus surgery (FESS) the surgeon washes out the sinuses and widens the drainage holes using an endoscope. This can be done under local or general anaesthesia.

Other types of surgery can remove nasal polyps or correct an obstruction in the nose that may be the cause of your sinusitis. Ask your doctor for more information about the different types of surgery, as all types of surgery carry the risk of complications and side-effects.

tgal
05-15-2011, 06:40 PM
Hi Giggles. I think this falls into the answer of "anything can be from Lupus". When you have an autoimmune disease like Lupus our immune responses are heightened. Although it is not listed as an autoimmune symptom when our immune system is overactive it can attack any part of us.

As for the cognitive issues, even people without CNS involvement can have terrible "brain fog". Often it is the worst part of the disease.

steve.b
05-15-2011, 11:42 PM
i had bad sinuses.
i had an operation about 3 months ago, and things are much better.
i used to be on antibiotics about every other week.

get your doctor to check if your sinuses are infected.

Peridot20_Gem
05-16-2011, 02:33 AM
Hi Steve,

I hope your alot better now since you had your op mate. xxx

SandyR
05-16-2011, 01:49 PM
I think sinus issues are also a sign of a larger problem the way IBS is thought to be. I have chronic sinusitis. When it's bad it's debilitating. Surgery has been recommended to me. The best (and by far least expensive) thing I've done to help my sinuses stay healthy is to use a daily nasal saline spray every morning and night. I'm not talking about a Neti Pot which will worsen my nose bleeds when my sinusitis is that bad, but an OTC $1.99 nose mist spray I can find anywhere there is a pharmacy. I use it before my allergy nose spray at night and again in the morning and it really has helped my sinuses to stay healthy. Skipping it, even for just a day or two, will immediately start a sinus infection, especially in the transatory weather and allergy season my area is experiencing.

Peridot20_Gem
05-16-2011, 02:15 PM
Sandy,

They mentioned nazel sprays to me but i have trouble with my nose constantley running and carrying tissue's everywhere i go, my dad once called me an Healthy Dog LOL

giggle
05-16-2011, 03:09 PM
Thank you all for the help :)

I have tried nasal sprays and find they irritate me more. I might go to the chemist this afternoon and ask if they have a saline nasal spray and give it a go anyway. I use saline eye drops to keep my eyes wet... I have a terrible dry eye problem :( I also have a mouth spray to keep my mouth from getting dry. Water just makes it worse :/

Peridot20_Gem
05-16-2011, 03:47 PM
Hello Giggle,

Your welcome mate and christ you really do sound in the wars but i'd see the chemist about something if you don't want to be refered.

Let we know how you feel mate with what you get and best of luck. xxx

~CJ~
05-16-2011, 09:46 PM
I found the nasal sprays worked well for me, but every now and then I still do a "flush" with saline. You can make it up yourself or use store bought. Absolutely disgusting but seems to help when things are pretty bad for me. I do it in the shower and yep pour the saline in then spit it out!

steve.b
05-16-2011, 11:52 PM
since my operation, i too use a saline spray.
"FESS" is easy to obtain at a chemist.

i laugh about having to wash my nose, inside as well as outside.


if i dont do it, then i have problems in just a couple of days.

giggle
05-17-2011, 01:54 AM
Wow :D I feel so isolated here... I had no idea it was so common with lupus people. I will give it a try and maybe feel a bit more normal.

giggle
05-17-2011, 04:21 AM
also in my CT scan report there was dural calcification... I have no idea what it is, but I have faith terri will find it for me :) <3

SandyR
05-17-2011, 06:47 AM
Thank you all for the help :)

I have tried nasal sprays and find they irritate me more. I might go to the chemist this afternoon and ask if they have a saline nasal spray and give it a go anyway. I use saline eye drops to keep my eyes wet... I have a terrible dry eye problem :( I also have a mouth spray to keep my mouth from getting dry. Water just makes it worse :/

I forgot to mention that a big reason I use the spray is that a humidifyer wouldn't be good in my home environment but it might be something that is good for you, especially if you find the sprays irratating.

SandyR
05-17-2011, 06:54 AM
Sandy,

They mentioned nazel sprays to me but i have trouble with my nose constantley running and carrying tissue's everywhere i go, my dad once called me an Healthy Dog LOL

Have you tried a Neti Pot? I find it works better for me than a spray when my nose is runny but is otherwise too drying and leads to me having nose bleeds so from what you said it may work for you.

Peridot20_Gem
05-17-2011, 12:37 PM
also in my CT scan report there was dural calcification... I have no idea what it is, but I have faith terri will find it for me :) <3Hi Giggle,

To do with a CT scan mate, this is what Dural calcification is and i'll attach info on the other names mentioned for you, so you can find out from who your seeing which one you do have.

“Dural calcification is witnessed in chronic subdural hematoma and in Gorlin’s syndrome. Extensive early calcification could be observed in the choroid plexus in patients with neurofibromatosis

Peridot20_Gem
05-17-2011, 12:41 PM
CHRONIC SUBDURAL HEMATOMA

A chronic subdural hematoma is an "old" collection of blood and blood breakdown products between the surface of the brain and its outermost covering (the dura). The chronic phase of a subdural hematoma begins several weeks after the first bleeding.

CausesA subdural hematoma develops when the tiny veins that run between the dura and surface of the brain (bridging veins) tear and leak blood. This is usually the result of a head injury.

A collection of blood then forms over the surface of the brain. In a chronic subdural collection, blood leaks from the veins slowly over time, or a fast hemorrhage is left to clear up on its own.

A subdural hematoma is more common in the elderly because of normal brain shrinkage that occurs with aging. This shrinkage stretches and weakens the bridging veins. These veins are more likely to break in the elderly, even after a minor head injury. Rarely, a subdural hematoma can occur without known cause (i.e., not from an accident or injury).

Risks include:

•Long term, heavy alcohol use
•Long-term use of aspirin, anti-inflammatory drugs, such as ibuprofen, or blood thinning (anticoagulant) medication
•Diseases associated with reduced blood clotting
•Head injury
•Old age
SymptomsIn some cases, there may be no symptoms However, depending on the size of the hematoma and where it presses on the brain, any of the following symptoms may occur:

•Confusion or coma
•Decreased memory
•Difficulty speaking or swallowing
•Difficulty walking
•Headache
•Seizures
•Weakness or numbness of arms, legs, face
Exams and TestsYour health care provider will ask questions about your medical history. The physical exam will carefully check your brain and nervous system to check for problems with:

•Balance
•Coordination
•Mental functions
•Sensation
•Strength
•Walking
Because the symptoms and signs are often subtle, if there is any suspicion of a hematoma, a head CT or head MRI scan will be done to further evaluate your symptoms.

TreatmentThe goal is to control symptoms and minimize or prevent permanent damage to the brain.

•Anticonvulsant medications such as carbamazepine, lamotrigine or levetiracetam may be used to control or prevent seizures.
•Corticosteroid medications may be used to temporarily reduce any swelling of the brain.
Surgery may be required. This may include drilling small holes in the skull to relieve pressure and allow blood and fluids to be drained. Large hematomas or solid blood clots may need to be removed through a larger opening in the skull (craniotomy).

Hematomas that do not cause symptoms may not require treatment.

Outlook (Prognosis)Chronic subdural hematomas that cause symptoms usually do not heal on their own over time. They often require surgery, especially when there are neurologic problems, seizures, or chronic headaches.

Some chronic subdural hematomas return after drainage, and a second surgery may be necessary.

Possible Complications•Permanent brain damage
•Persistent symptoms
◦Anxiety
◦Confusion
◦Difficulty paying attention
◦Dizziness
◦Headache
◦Memory loss
•Seizures

Peridot20_Gem
05-17-2011, 12:46 PM
GORLIN SYNDROME

What Gorlin syndrome isGorlin syndrome is a rare condition. It is also sometimes called nevoid basal cell carcinoma syndrome (NBCCS). It affects about 1 in 31,000 people, although the true figure may be higher as mild cases can go unrecognised. Between 7 and 8 out of 10 people with Gorlin syndrome (70 - 80%) have someone else in their family with it, and have inherited a faulty gene from one of their parents.

People who have Gorlin syndrome may have a number of different medical conditions including

An increased risk of developing basal cell skin cancer
Skin problems - skin tags and skin cysts
Cysts on your jaw that usually develop during your teens
Medulloblastoma (PNET)
Changes in the bones - they may be longer and larger than usual
Pits on the palms of the hands and soles of the feet
Benign tumours of the ovary - these develop in 1 in 5 (20%) people with the syndrome
Doctors usually diagnose Gorlin syndrome when someone has two or more of the conditions mentioned above.

Although people with Gorlin syndrome have an increased risk of developing PNET, this risk is still small. It is a type of brain tumour which usually affects children between the ages of 2 and 5. They develop in 1 in 20 (5%) people who have Gorlin syndrome. Only a few children who have PNET also have Gorlin syndrome.

Back to top
Coping with Gorlin syndromeYou may feel overwhelmed when you hear that you have a condition that can increase your risk of developing medical problems. It may help you to know that the conditions are manageable. For some of the conditions you won’t need any medical treatment. Even if you do need treatment, it is likely to work well, including the treatment for skin cancer. We have answered a specific question about treating skin cancer when you have Gorlin syndrome. It may be reassuring for you to know that people who have Gorlin’s syndrome usually live as long as people who don’t have the syndrome.

The Gorlin Syndrome Group have detailed information on their website and offer support to people affected by Gorlin syndrome.

Back to top
The sun and Gorlin syndromeAs people with Gorlin syndrome have an increased risk of skin cancer, you need to take extra care in the sun. You should always use a sun block and cover up in the sun. There is more information about taking care in the sun on our Sunsmart website.

Peridot20_Gem
05-17-2011, 12:49 PM
NEURFIBROMATOSIS

Neurofibromatosis is the general term used to describe a genetic disorder that affects the nervous system (brain and spinal cord) and the skin. It causes non-cancerous tumours to grow on nerves throughout the body.

The term neurofibromatosis actually describes two completely different diseases that share similar features:

•type 1 neurofibromatosis (Nf1) – also known as von Recklinghausen's disease or peripheral neurofibromatosis
•type 2 neurofibromatosis (Nf2) – also known as bilateral neurofibromatosis.
As these are distinct diseases with different causes, they will be described separately and referred to as Nf1 and Nf2.

What are the symptoms?
The tumours that grow on the nerves cause different problems, which depend on the type of neurofibromatosis and the number, size and location of the tumours (see Neurofibromatosis - symptoms).

For some people, Nf1 is little more than a skin condition and they do not have related medical problems. However, complications are quite common and can occasionally be serious (see Neurofibromatosis - complications).

The symptoms of Nf2 are more serious. Tumours develop on nerves deeper inside the body. The most common symptom is a tumour that develops on the nerve to the ear. This is called acoustic neuroma and causes a gradual loss of hearing.

What is the cause?
Both types of neurofibromatosis are caused by a mutation (change) in a gene. The gene can be inherited from your parents or it may change spontaneously for no reason.

Who is affected?
Both types of neurofibromatosis are equally common in men and women, and affect all ethnic groups equally.

How common is neurofibromatosis?
Nf1 is the most common type of neurofibromatosis. In the UK, about one in every 2,500 babies are born with Nf1, making it one of the most common genetic disorders.

One in 35,000 babies in the UK are born with Nf2.

What is the outlook?
There is no cure for neurofibromatosis, but any medical problems caused by the condition can be treated (see Neurofibromatosis - treatment).

Genetic screening and counselling is available for families with a history of neurofibromatosis (see Neurofibromatosis - diagnosis).

Peridot20_Gem
05-17-2011, 12:52 PM
Hi Giggle,

I've added all 3 condition' which are linked to Dural calcification and best of luck mate finding out which one is linked to what they've found.

((Love & kisses to you mate)) xxx

Peridot20_Gem
05-17-2011, 12:55 PM
Have you tried a Neti Pot? I find it works better for me than a spray when my nose is runny but is otherwise too drying and leads to me having nose bleeds so from what you said it may work for you.Hi Sandy,

I've never tried nothing for mine mate, i put up with the swelling's around my eyes the lot and the nose bleeds.

I've got 2 chemists here by me and i'll have a look mate. xxx

giggle
05-17-2011, 02:40 PM
Thanks terri :)

I hopefully have none of those, I have never had a head injury other than when I was playing football in my teens and CT scans in between then and my last CT showed no sign. I wonder if the radiologist has it wrong. I wonder why the CT scan says nothing but dural calcification at the vertex and the MRI says nothing but sinusitis. LOL! I wonder what that means. Im getting pretty frustrated. My doc wants to see how the thyroid meds go, I am certain it is nothing to do with my thyroid. That would require hyperthyroidism and I am as fat as a beach ball with little explanation for it. The weight is just stacking on regardless of my calorie counting :(
I really feel like something is very wrong, everything is increasing and changing rapidly and I want answers now so we can stop it before real harm is done.

Peridot20_Gem
05-17-2011, 03:52 PM
Hi Giggle,

It sounds to me mate with the results from the CT scan and the MRI scan there's some answering to be done.

Refering your thyroid meds the doctor is right in one concern because with an underactive thyroid gland the weight hammers on you but it only needs it to go abit hypo which mine loves doing and the weight drops off, mind you they are keeping a check on me, the nurse weighted me the other day at 62kg so i've lost some more, with the meds i take i should be looking like an elephant that's what they can't understand.

Your like me getting anxious, i've got to see the gastro specialist about my Liver before i can sort any meds out for this lot and day in and out nothing but pain.

giggle
05-17-2011, 11:31 PM
:) thankfully I think Im better off than you terri you poor thing you are going through EVERYTHING. I can't wait for the meds to start working for the weight... I am eating like a bird, I eat less than my 6yo daughter. Im only on 50micrograms a day at the moment. :(

Peridot20_Gem
05-18-2011, 03:29 AM
Giggle,
I've never had a large appetite i never eat breakfast the thought makes me feel sick wakening to food and my hubby goes mad, come dinner time i eat 12 jaffas and come 5pm at night just my dinner and half the time i can't fully get through that because of the pain going on which as got to be sorted.
I'm really waiting for meds now, the paracetamol dow help much, so my psychiatrist as mentioned Anti-cancer drugs to surpress my immune system, i let the neuro know and she said i'd rather you be on that then plaquenil and i gave her 3 medication's he mentioned and she said when it's been sorted she'd like me on METHOTREXATE.
Giggle never say your better than me mate because this Lupus does so much to each and everyone of us, you never know what's heading at you, that's what i hate about this Disease so much.

I'm getting sick and tied of having to keep checking my spelling through fogginess, that's another pain in the neck.