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Lenali
05-14-2011, 12:51 AM
hey guys,

i'm sure i'm not the only one experiencing loss of brows and lashes. i'm having sle!

how do you guys deal with it and most important: DO THEY GROW BACK? i didn't pluck my brows for months, as i lose them (in "eyebrow flares", not all the time, an not those days i feel very bad because of the lupus. it's something independet)

did you talk to a dermy or did you try creams, lotions (maybe with steroids to reduce the inflamations)? ? ?

would love to her some of your experiences, i'm super sad about the loss :-/

steve.b
05-14-2011, 01:00 AM
hi lenali.
i am male, and have not had the pleasure of loss of facial hair.
i have loss of head hair, and severe thinning.

others will be along with more info for you, but i wanted to say hi.

Lenali
05-14-2011, 01:03 AM
hi steve
thx for welcoming me :)
is there anything that helps against your hairloss? btw.: do you suffer from scalppain/hair root pain too?
I've lost like 30% of the hair on my head.

Linda From Australia
05-14-2011, 01:07 AM
I have had alopecia over the years, loosing patches of my hair on my head. I cannot remember what sort of cream I used, as it was many years ago.

There is someting that is really bothers me, and thanks for Steve for being a catalyst for this thought.


WHy one Earth don't we ever loose our leg hairs???????????

For goodness sake Lupus, why don't you just make one symptom to our advantage? It would be really nice if you would make our leg hairs fall out so we don't have to put our joints under stress to shave our legs. You know life really is very unfair at times!!!!!

steve.b
05-14-2011, 01:12 AM
i have no pain.....except pain of pride.
i used to love my long thick hair.
it does not hurt at all.
i now burn real easy. sun burn on the scalp does hurt.

Linda From Australia
05-14-2011, 01:13 AM
Steve, come on.... that is not Lupus, that is because you are getting old

Well I think it is anyway, you are taller than me I couldn't really tell.

ha ha I love your new animal name "show poodle" how cute. You must let your kids know your name

red246
05-14-2011, 01:14 AM
WHy one Earth don't we ever loose our leg hairs???????????

For goodness sake Lupus, why don't you just make one symptom to our advantage? It would be really nice if you would make our leg hairs fall out so we don't have to put our joints under stress to shave our legs. You know life really is very unfair at times!!!!!

Love it!

Lenali - I do have some thinning of my eyebrows at times. Fortunately for me I have thick eyebrows so nobody really notices except for me.

Lenali
05-14-2011, 01:28 AM
Love it!

Lenali - I do have some thinning of my eyebrows at times. Fortunately for me I have thick eyebrows so nobody really notices except for me.

Same here Red. Nobody has noticed it except me. I also lose them in flares!!! I mean eyebrowflares...even if my Lupus is kind of quite! Some weeks ago I lost like 30 hairs in every brow. But I'm not sure if they every grew back.
How is it in your case? Do you notice some regrowth?

tgal
05-14-2011, 05:20 AM
Hi Lenali! Welcome to WHL. As you can see we have a wonderful (and sometimes silly) group of people that are wonderful helpful! Sometimes the best thing for us is to be able to laugh.

I don't have the facial hair loss but I do have hair loss and scalp pain or hair root pain. That is actually the way that I know I am going into a flare. My scalp starts hurting before the other symptoms start. Some of the hair loss has been helped by the plaquenil. It took it awhile but it did help for a long time

ruziska
05-14-2011, 06:50 AM
One of the few symptoms I haven't experienced is hair loss. Since starting menopause, I've had just the opposite effect which is wonderful only in the respect that my hair has always been plentiful, yet super fine. It is now thickening up a bit. My body hair is blonde to the point of being invisible. If I don't use eyebrow pencil, you can't tell I actually have any. That invisibility comes in handy elsewhere, but I find I look quite odd without eyebrows so I pencil them in. I've tried having them dyed, which works for some people and works great on the hair on my head, but washes right out of my eyebrows. So maybe the effects of menopause in this case are counteracting the effects of lupus.

Nonna
05-16-2011, 03:51 AM
Welcome to WHL, I'm sorry to say that my once gorgeous lashes are gone and I now have half eyebrows. luckily I wear glasses so I'm really the only one who feels and sees the loss. I have hypothyroidism and was always told that it was the result of that. Do they come back? Mine haven't but maybe I'm an exception to the rule. You never know? I wouldn't trust in creams; sounds like quack medication to me.

Good thoughts and hugs

ritzbit
05-16-2011, 06:18 AM
I dont lose any facial hair but my hair comes out in little clumps all the time. And I guess I'm the only "lucky" one here who doesnt grow leg hair anymore, and under arm hair. I actually would rather shave lol I feel really weird about not growing any body hair.

SandyR
05-16-2011, 01:43 PM
hey guys,

i'm sure i'm not the only one experiencing loss of brows and lashes. i'm having sle!

how do you guys deal with it and most important: DO THEY GROW BACK? i didn't pluck my brows for months, as i lose them (in "eyebrow flares", not all the time, an not those days i feel very bad because of the lupus. it's something independet)

did you talk to a dermy or did you try creams, lotions (maybe with steroids to reduce the inflamations)? ? ?

would love to her some of your experiences, i'm super sad about the loss :-/

I've had definite eyebrow thinning and wanted to mention that it can also be a sign of a thyroid problem.

Lenali
05-17-2011, 01:49 AM
Thank you guys for your nice replies :)
Thyroids have been checked various times. Results always came back fine!

I guess it's just a thing I have to live with. Lost like half of my eyebrowhairs in the last week. When I weak up in the morning my whole face is full of hairs. Lupus can always surprise you, we all know that!!!

God bless,
Elena

Peridot20_Gem
05-18-2011, 12:14 PM
hey guys,

i'm sure i'm not the only one experiencing loss of brows and lashes. i'm having sle!

how do you guys deal with it and most important: DO THEY GROW BACK? i didn't pluck my brows for months, as i lose them (in "eyebrow flares", not all the time, an not those days i feel very bad because of the lupus. it's something independet)

did you talk to a dermy or did you try creams, lotions (maybe with steroids to reduce the inflamations)? ? ?

would love to her some of your experiences, i'm super sad about the loss :-/Hi Lenali,

The only hair loss i've been suffering with is my hair but it's such a shame when it goes to more degree's because of our appearence.

I'm adding below info on the condition besides you hair for eyebrows and eye lashes. ~Hugs Terri~ xxx

HAIR LOSS INFO

The different colours result from variations in the amount, distribution, and type of melanin pigment in them, as well as from variations in surface structure that cause light to be reflected in different ways.

Hairs may be coarse, or so thin and colourless as to be nearly invisible. Straight hairs are round in cross section, while wavy hairs are alternately oval and round; very curly and kinky hairs are shaped like twisted ribbons.

During the nineteenth century, renowned social scientists posited relationships between some of these variations in hair type and intelligence, or the potential for civilized behaviour, and indeed, in some instances, saw them as a marker of humanness.

Causes of hair loss both male and female

There are many causes of hair loss.

Some are due to high fever, serious infections, major surgery, and in some cases emotional and physical stress causes hair loss.

Other causes of hair loss include thyroid disease, lack of protein in dirt, low iron, and prescriptive drugs given for blood thymes, acne arthritis, and heart disease.

Hair loss can also occur in women who take contraceptives; as well as, after giving birth.

Possible causes of hair loss comes from family genes and hormonal patterns. The developing of bald patches on the beard or on the scalp also causes hair loss.

Men and women who often visit barber shops and beauty salons can contact ringworms, which also causes hair loss.

In some cases adolescence experience hair loss from an illness or not eating properly.

Androgenetic Alopecia is the most common cause of hair loss.

When hair follicles stop producing hair growth hair loss occurs. Anyone can experience hair loss on the scalp, eyebrows, eyelashes, and body hair. If a man experiences genetic baldness it it not necessarily caused by hair loss. It is however caused by the body not being able to produce new hairs.

The signs of male genetic baldness is a receding hairline, thinning around the crown, and bald spots. Because of hereditary genes, males who produce testosterones are most likely to experience baldness.

In pregnant females the normal shedding of hair per day is put on hold. Within 3 months the hair starts shedding rapidly.

For most teens hair loss is temporary. Thyroid disease, teen medications, and skin disease are a few causes of hair loss in teens.

When hair grows-it grows in cycles and eventually falls out. Even though hair sheds 50 to 100 hairs a day, scalp hair grows at about 6 inches per year.

Hair is made up of protein which is required to help produce normal hair. Illnesses like thyroid disease, kidney and liver, cancer and lupus causes hair loss.

Medications like Lithium, diet pills with amphetamines, and chemotherapy drugs are major risks of hair loss too.

Alopecia Areata is a skin disease that causes hair loss on the scalp and other places on the body.

Trichotilloomania, a disorder that results in pulling on the hair also causes hair loss.

People with eating disorders like anorexia and bulimia suffer hair loss.

Chemically treated hair and hairstyles worn too tight damages the hair follicles that causes the hair to thin.

In the United Stated two out of eight women experience hair loss. There is no pattern for hair loss in women. Few women experience hair loss at a young age, but it mostly occurs in older women.

Treatment, prevention and solution for hair growth both man and woman

The majority of products on the market make use of a variety of chemicals that can have harmful side effects and actually cause damage to the hair and scalp.
Moreover, most of these chemicals are inconsistent at best when it comes to stopping hair loss.


The majority of hair loss prevention products on the market do very little to regrow hair.
At best, they slow down the process of androgenetic alopecia (male pattern baldness), and in many cases they donít even do that.

Saw palmetto is a naturally occurring substance that has been used effectively in hair loss

prevention and hair regrowth throughout the world.
Studies have shown that saw palmetto lowers the levels of DHT (dihydrotestosterone) in the body by blocking receptors on the cell membranes. DHT is the major cause of typical male pattern baldness, and when it is reduced, new hair can grow unimpeded. Almost 95% of hair loss caused by them.
Some of result from topical treatment that has successfully block DHT as bellow picture. Itís work both male and female.


As the saw palmetto in Provillus blocks DHT, vitamin B6, biotin, zinc, and magnesium work to provide our scalp with the vital nutrients it needs to produce healthy hair.
Gota Kola, Eleuthro, Uva-Ursi, pumpkin oil, and other extracts are also used to stimulate hair growth and assist with protein synthesis and energy metabolism.

donnajh
05-24-2011, 01:02 PM
My eyebrows are pretty much non existant now. When I'm not in a flare a few hairs grow back but I have to pencil them in all the time. It's a pain but luckily that's the only facial hair loss I have. The hair on my head has also thinned a lot since the lupus decided to make it's presence known.

Peridot20_Gem
05-24-2011, 04:31 PM
Hello donnajh,

Welcome to WHL and its lovely to have you with us, why not introduce yourself properly so the member's get to know you better as we're all here to support one another, through all bad times and situation's.

I always think eye browing your eyebrows is'nt to bad if it suits you, i used to do it when i was 16 and i knew nothing about this, the only trouble with it, is knowing to keep your hands from by your eyes, as i've seen the time i've smudged mine while out (Looking a fool or what).

My hairs coming out a fare bit but still growing quickly and i'm just lucky in one way i have thick hair.

It will be nice getting to know you Terri xxx

steve.b
05-25-2011, 02:49 AM
welcome donnajh,
nice to have you with us.
i look forward to getting to know you, through these posts.

Peridot20_Gem
05-27-2011, 05:31 PM
Hello Elena,

How you feeling now mate?...i've got thyroid trouble but never had that problem with facial hair problems and your test coming back negative was a good sign, if your bloods was'nt playing up. xxx