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  • Nonna's Avatar
    Today, 11:06 AM
    How's the pain, did you call the doctor?
    3 replies | 101 view(s)
  • Nonna's Avatar
    Today, 11:01 AM
    Nonna replied to a thread Trapped in Lupus Erythematosus Symptoms
    Hi, I've been dealing with the effects of Lupus since I was 18. I'm 66 now. I can't tell you how many different phases of changes that I've had to...
    2 replies | 40 view(s)
  • Nonna's Avatar
    Today, 10:33 AM
    Nonna commented on blog entry As the world turns, do I? in Nonna
    Moonbeam I can so understand and sympathize. Today seems to be a good day for us. I walked this morning and had time with just me. Of course my...
    4 replies | 121 view(s)
  • Moonbeam's Avatar
    Today, 07:07 AM
    Moonbeam commented on blog entry As the world turns, do I? in Nonna
    My parents were the same way. They would not leave their house. Then they got to the point that they couldn't physically leave. That is when my...
    4 replies | 121 view(s)
  • mikey101's Avatar
    Yesterday, 02:49 PM
    mikey101 replied to a thread so frustrated in Lauri's Lounge
    http://i61.tinypic.com/2wrhs1u.jpg http://i58.tinypic.com/4j86c2.jpg there are some photos of my rash when it flares up. it just seems so obvious...
    10 replies | 138 view(s)
  • Saysusie's Avatar
    Yesterday, 09:50 AM
    I am not sure why your were told that this would get easier. This is a chronic disease that could be with us, in one form or another, for the rest...
    2 replies | 40 view(s)
  • Saysusie's Avatar
    Yesterday, 09:36 AM
    If she has it in her mind that making this trip to participate in the trials might cure her, there is very little that you can do to change her mind...
    3 replies | 53 view(s)
  • Saysusie's Avatar
    Yesterday, 09:30 AM
    I agree with Nonna . make your doctor aware of the issues you've been having with his staff. The chances are pretty good that he does not know about...
    2 replies | 16 view(s)
  • Nonna's Avatar
    Yesterday, 04:59 AM
    Sometimes the doctor doesn't know what his staff is up to. I actually was responsible for a major staff change at one doctors office. Staff ignored...
    2 replies | 16 view(s)
  • Nonna's Avatar
    Yesterday, 04:53 AM
    Nonna commented on blog entry As the world turns, do I? in Nonna
    Moonbeam thanks, there is no one here where we are and they won't leave. My family is all up north, this is my parents world and they don't want to...
    4 replies | 121 view(s)
  • Moonbeam's Avatar
    04-21-2014, 05:59 PM
    Moonbeam commented on blog entry As the world turns, do I? in Nonna
    Don't let your parents get to you, Nonna. You know you are not ignorant. Try to get a breather, even if it is only going outside for a few moments....
    4 replies | 121 view(s)
  • Moonbeam's Avatar
    04-21-2014, 05:47 PM
    I received my third allergy injection today. I was perturbed because the allergist was faxed two weeks ago and never responded to the fax. I needed...
    2 replies | 16 view(s)
  • Moonbeam's Avatar
    04-21-2014, 05:36 PM
    Moonbeam replied to a thread so frustrated in Lauri's Lounge
    Mikey I can really empathize with you. The Drs. made me feel like a lunatic and a hypochondriac at first too. That is until I found a compassionate...
    10 replies | 138 view(s)
  • mikey101's Avatar
    04-21-2014, 01:06 PM
    mikey101 replied to a thread so frustrated in Lauri's Lounge
    it's so frustrating as although the biopsy showed seborrheic dermatitis the rash takes a malar shape when it flushes and perfectly matches up to...
    10 replies | 138 view(s)
  • Sdelia3's Avatar
    04-21-2014, 12:27 PM
    I was told this would all get easier . It's actually the opposite . It's only becoming more real. This is my life now .. Trapped by medication that...
    2 replies | 40 view(s)
  • n.mac's Avatar
    04-21-2014, 09:37 AM
    n.mac replied to a thread Zoo Time in Lauri's Lounge
    Sorry......Go Cubs!!!
    10 replies | 151 view(s)
  • kim,l's Avatar
    04-20-2014, 07:45 PM
    thanks nonna I agree but I worry she will go to any length even try to go to usa to get help she is already emailing and calling. I worry she will...
    3 replies | 53 view(s)
  • Saysusie's Avatar
    04-20-2014, 08:37 AM
    Thank You Nonna! Happy Easter to you as well and I am wishing each and everyone of you to have a blessed and loving day! Peace and Blessings...
    1 replies | 21 view(s)
  • Nonna's Avatar
    04-20-2014, 06:23 AM
    Just watched the kids of the complex run and hunt Easter Eggs. It was wonderful to see them having so much fun. Easter is a rebirth time of year....
    1 replies | 21 view(s)
  • Nonna's Avatar
    04-20-2014, 02:19 AM
    I think that I have heard of some such research, but I don't think that there are any significant results. As for the trials, I've read that there...
    3 replies | 53 view(s)
  • kim,l's Avatar
    04-19-2014, 11:01 PM
    I have joined local online support group and I a worried about one girl she seems to have been told that the usa at the mayo clinic is doing research...
    3 replies | 53 view(s)
  • Nonna's Avatar
    04-19-2014, 01:04 PM
    Nonna replied to a thread so frustrated in Lauri's Lounge
    Just remember a lot of us live and have lived inthat no-man's land for a long time. I had lupus for 30 years before I got a diagnosis. Keep on...
    10 replies | 138 view(s)
  • mikey101's Avatar
    04-19-2014, 12:04 PM
    mikey101 replied to a thread so frustrated in Lauri's Lounge
    I saw a Rheumatologist privately after hassling my GP for a referral and he explained that my symptoms and bloodwork sound more suggestive of Post...
    10 replies | 138 view(s)
  • Nonna's Avatar
    04-19-2014, 09:47 AM
    Nonna created a blog entry As the world turns, do I? in Nonna
    I'm feeling out of sorts at the moment and can't figure it out. My health is pretty stable but I think I'm unhappy, tired of coping. Coping with...
    4 replies | 121 view(s)
  • Saysusie's Avatar
    04-19-2014, 09:25 AM
    I had the same issues quite some time ago and was also told to wear a wristband. However, I had to wear mine day and night! Please do speak with...
    3 replies | 101 view(s)
  • Saysusie's Avatar
    04-19-2014, 09:23 AM
    IS there any sign of a rash on your eyelids? If so, this may be a discoidal rash that is causing you eyelids to be swollen. I agree, speak with...
    2 replies | 82 view(s)
  • Saysusie's Avatar
    04-19-2014, 09:17 AM
    That is wonderful news Nonna..I hope that you continue to get better and that it never occurs again. I am so glad that you caught it so quickly and...
    5 replies | 165 view(s)
  • Saysusie's Avatar
    04-19-2014, 09:09 AM
    I'm glad to hear that it was better this time. Best of luck with your esthetician! Warm Hugs Peace and Blessings Namaste Saysusie
    5 replies | 144 view(s)
  • Saysusie's Avatar
    04-19-2014, 09:06 AM
    Saysusie replied to a thread so frustrated in Lauri's Lounge
    I was about to suggest the same thing! Perhaps it is time for you to see a rheumatologist and make sure that it is one who is familiar with Lupus...
    10 replies | 138 view(s)
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